Hello,
I'm from Australia, and I know my friend Ailsa posted here a few times, and got much help from everyone (Ailsa's postings, Ailsa's profile).
I just wanted to let you know that she passed away, Wednesday 13th April in the evening.
She was the most gutsy courageous lady I have ever met, and it was a blessing to have known her, and had her as my friend. I'm so sad, I just cannot believe she has gone.
Blessings to all of you amazing courageous people.
Forums
5 posts
• Page 1 of 1
Re: Ailsa
I am so very sorry to hear this news, Ally. But thank you for letting us know about Ailsa.
You could tell from Ailsa's postings that she was having a very difficult time. With some people, multiple myeloma is just so very, very aggressive. That seemed to be so in her case. It also seemed like she might have another disorder, beyond just multiple myeloma. Perhaps some sort of leukemia, or perhaps myelodysplastic syndromes. (I am just speculating.)
I am sure I am not the only one here who would ask that you extend our condolences to her family and friends.
You could tell from Ailsa's postings that she was having a very difficult time. With some people, multiple myeloma is just so very, very aggressive. That seemed to be so in her case. It also seemed like she might have another disorder, beyond just multiple myeloma. Perhaps some sort of leukemia, or perhaps myelodysplastic syndromes. (I am just speculating.)
I am sure I am not the only one here who would ask that you extend our condolences to her family and friends.
Re: Ailsa
Thanks so much. She never got a break, not once, and I think it took a long time to get diagnosed, gosh they had her down as everything, from Legionnaires' disease to colitis, it just took such a long time for anything to get started for her.
The amazing thing is she did most of this journey on her own. She stayed at home until the last week, before she took herself to hospice care. The nurses were amazed, She hated asking for help, She had some beautiful awesome friends in Queensland, but I am 1000 miles away. I was blessed to be able to fly up a few times, and also be with her for that last part.
Thank you everyone who helped her here. XXXX
The amazing thing is she did most of this journey on her own. She stayed at home until the last week, before she took herself to hospice care. The nurses were amazed, She hated asking for help, She had some beautiful awesome friends in Queensland, but I am 1000 miles away. I was blessed to be able to fly up a few times, and also be with her for that last part.
Thank you everyone who helped her here. XXXX
Re: Ailsa
Hello Ally,
Thank you for letting us know about Alisa, although it's very sad news.
Like Cheryl G, I remember reading Alisa's posts and feeling bad that there was so little that could be done to help her. Some of us are (relatively) lucky, and some not so lucky, when it comes to our journeys with this disease. I'm sorry that Alisa was one of the unlucky ones.
Please accept my condolences on the loss of your friend.
Mike
Thank you for letting us know about Alisa, although it's very sad news.
Like Cheryl G, I remember reading Alisa's posts and feeling bad that there was so little that could be done to help her. Some of us are (relatively) lucky, and some not so lucky, when it comes to our journeys with this disease. I'm sorry that Alisa was one of the unlucky ones.
Please accept my condolences on the loss of your friend.
Mike
-
mikeb - Name: mikeb
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 2009 (MGUS at that time)
- Age at diagnosis: 55
5 posts
• Page 1 of 1
Return to To Those We Will Always Remember