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Re: Advice: two treatment options at first relapse (aged 34)

by Helga on Sun Mar 02, 2014 5:30 pm

Greetings back from London, Dr Libby!

Thanks so much for taking the time to reply. It's reassuring to know that you think I'm up to speed on what there is to know at this point in time... I have read up in fits and starts (aided by steroid insomnia the first time around!) and although I've tried to ignore myeloma sites for much of the last year in remission, I did feel like at this point I ought to do my 'due diligence', as it were, before moving forwards.

In the end, my recent light chains taken at the trial hospital were only 78.5 so I'm proceeding with VTD at my usual hospital this week, all being well. I'm happy with that choice and glad to be getting started it and out of the waiting mode.

As you say, we're lucky here to have great healthcare. I work in international development so I'm all too well aware of places in the world where you would be lucky to make it past the age of 5, and most likely not have clean water and basic sanitation, let alone the latest myeloma drugs. I also had a great (and free!) education from nursery school through to one of the best universities in the world, so I'm lucky to be able to read and understand things about myeloma, even though I haven't done any science since the age of 16 :-)

Thanks for the best wishes and, yes, here's hoping for more breakthrough research ASAP.

Helga
Name: Helga
Who do you know with myeloma?: Me
When were you/they diagnosed?: May/June 2012
Age at diagnosis: 32

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