[Cheryl G]

Re: Abnormal lab test - sign of MGUS or multiple myeloma?

by Cheryl G on Thu Nov 20, 2014 10:52 am

A very small percentage of myeloma patients have what is known as non-secretory myeloma, which means they do not have any abnormal (monoclonal) proteins in their blood or urine. Only about 3 percent percent of myeloma patients are truly non-secretory, according to this study:

S Lonial and JL Kaufman, "Non-Secretory Myeloma: A Clinician’s Guide," Sep 15, 2013.

[caajcbj]

Re: Abnormal lab test - sign of MGUS or multiple myeloma?

by caajcbj on Fri Nov 21, 2014 2:18 am

Thanks for the info, Cheryl G. Seeing doc today.

[bad blood]

Re: Abnormal lab test - sign of MGUS or multiple myeloma?

by bad blood on Fri Nov 21, 2014 2:15 pm

I am going to hit my 9-year mark with lambda MGUS in a couple of months. My hemo doc told me that if I have not progressed in 9 years, I can stop getting tested for my MGUS and resume
my normal, or somewhat normal, life.

My stable M-spike puts me back in a very low risk. He is new and not a myeloma doc, but stable M-spike is stable M-spike. Sure I can bleed to death on a single cut. But my bad blood has been one tricky beast. So all you MGUSers: You can put the MGUS to sleep for many years.

Good luck.