I too feel like I am "drinking from a firehose" to gain more information on this crazy disease. I am still new to this process, I am currently smoldering, just a few months shy of 50, only discovered last month, but I find that it has taken over my life. Every thought is "what if", my free computer time has become "searching" and I count down the days until I go for my next bloodwork (which is in 10 days) to see how things are going.
I also had the Zometa, I found by that night I was achy with shortness of breath and for the next 2-3 days in bed with flu-like symptoms and fever. I took it to mean it was working
I hope your rash is healing and that you are feeling well. Keep us updated on your journey.
Eileen
