[Tigerboy74]

41 years old - second go-round

by Tigerboy74 on Tue Apr 05, 2016 4:09 pm

In 2007, I was playing on top of dugout where I did side work for a minor league baseball team and SNAP! There went my left femur bone! I had quite a bit of bone pain prior and did nothing about it except for massage therapy. I was put in an ambulance and off the ER.

A 4 inch hole in my femur was discovered and I was diagnosed with a plasmacytoma! I was 32 years old at the time.

They put me in surgery and started radiation. Radiation did not get the results needed, so we did 4 rounds of Velcade, thalidomide, and dex. It worked and I was in remission until 2012!

In 2012, the M-spike went from a 0.02 g/dL up to a 0.08 g/dL this past July.

My oncologist seeing this gave me a life expectancy of 10-15 years before running an MRI, bone marrow biopsy, and a full skeletal survey.

He ran the reports and they all came back FREE AND CLEAR! I will live long life!

I got a second opinion and had a PET scan run where there were 2 hot spots (shoulder and L2) – no lesions, no pain.

I just finished chemo from September – February and start my auto stem cell transplant on April 12!

Thank God for second opinions!

All of the levels look great and I am hitting it hard! Can’t wait to get this transplant started!

[JPC]

Re: 41 years old - second go-round

by JPC on Tue Apr 05, 2016 5:16 pm

Best of luck to you Mike. I am sorry that you had these issues at such a young age. Looks like you do not have M-spike driven multiple myeloma. Just wondering, do you have light chain markers or are you a nonsecretor?

Best of luck to you. Regards,

[Tigerboy74]

Re: 41 years old - second go-round

by Tigerboy74 on Wed Apr 06, 2016 9:21 am

I have kappa free light chain levels ranging from 20.88 - 36.45 and a kappa-lambda ratio between 1.66 - 2.06 and an M-spike of 0.3 g/dL (3 g/L) going into stem cell transplant

Everything else in my labs look normal.

I am assuming that these are all good numbers.

[KarenaD]

Re: 41 years old - second go-round

by KarenaD on Mon Apr 11, 2016 8:51 am

Hi Mike,

I just wanted to wish you the best of luck as you start your ASCT tomorrow. I hope it's all smooth sailing for you and that your recovery is uneventful and that the transplant is a resounding success!

Karen

[Tigerboy74]

Re: 41 years old - second go-round

by Tigerboy74 on Tue Apr 12, 2016 9:08 am

Karen, best of luck to you. I'm in the waiting room ready to go!