Pat Killingsworth's Archive

Pat Killingsworth wrote a regular column for The Myeloma Beacon from April, 2010 to February, 2016. He was diagnosed with multiple myeloma in April, 2007 at the age of 51. He initially achieved a complete response to treatment with a combination of extensive radiation and continuous drug-based therapy. Four years after his diagnosis, Pat's disease returned, and he underwent a series of additional treatments, including a total of three autologous stem cell transplants at different times. Unfortunately, Pat passed away on his 60th birthday in February, 2016. By that time, however, Pat had made a significant impact on the lives of many patients and caregivers through his extensive writing and speaking about multiple myeloma. Pat's efforts were supported and made possible in many ways by his wife Pattie, who is also a cancer survivor, and is still cancer-free today.

Pat Killingsworth has written 140 article(s) .

[ by | Dec 1, 2011 8:47 am | 47 Comments ]
Pat’s Place:  My Myeloma Therapy Is Working - But Not Without Significant Side Effects

I have experienced a lot medically since my previous column.  Some of the news is good.  But there have also been a few hiccups along the way …

Let’s focus on the good news first. 

As hoped, the combination of Revlimid (lenalidomide), Velcade (bortezomib) and dexamethasone (Decadron), commonly abbreviated RVD, that I started six weeks ago is working.

My monoclonal protein number - or M-spike - has been cut in half from 0.6 to 0.3.

This …

Tags: , ,
Read the full story »
[ by | Nov 17, 2011 3:28 pm | 39 Comments ]
Pat’s Place: The Purgatory of Waiting

A while back I reported how my compromised immune system, reacting to years of chemotherapy, had allowed melanoma (skin cancer) to develop on my left ear. The melanoma was surgically removed on Monday.

But this week’s column isn’t about that.  The surgery went well — although my surgeon did need to remove a larger part of my ear than he originally anticipated.

No, this week’s column is about waiting.

Let me set the scene for you.  I’m lying in pre-op, …

Tags: , ,
Read the full story »
[ by | Nov 10, 2011 2:34 pm | 34 Comments ]
Pat’s Place: Dealing With Peripheral Neuropathy

I, like probably many multiple myeloma survivors, experience peripheral neuropathy.

Peripheral neuropathy is a condition that is a result of nerve damage. It is commonly found in diabetes patients and older people, as well as those of us with multiple myeloma.

Symptoms include numbness in the hands and feet, loss of balance, trouble writing, opening jars, trouble with buttons or zippers, and/or pain in various parts of the body.

Sometimes people who suffer from peripheral neuropathy experience something best described …

Tags: , , ,
Read the full story »
[ by | Nov 3, 2011 1:18 pm | 38 Comments ]
Pat’s Place: Thank You, Team Myeloma!

As I prepared to write my weekly column, I must admit my mind drew a blank!  Why?  Sheer exhaustion, I think.

As most of you know, I underwent an autologous stem cell transplant this summer. Two weeks ago, I shared how the transplant had actually made my multiple myeloma worse.

Earlier this week, I learned that surgery will be required to remove an area of melanoma on my left ear.  That’s right — melanoma — as in skin cancer.

I …

Tags: , ,
Read the full story »
[ by | Oct 27, 2011 12:27 pm | 22 Comments ]
Pat’s Place: Tips For Infusion Days

I started my Velcade (bortezomib) / dexamethasone (Decadron) infusions again last week after recovering for four months from a stem cell transplant that I received this summer.

The infusion process got me thinking about ways I have learned to cope with getting “stuck” for IVs over the years.

Sure, I’m a lot tougher now than when I started treatment for my multiple myeloma almost five years ago.

Even so, it isn’t any fun sitting still while a nurse …

Tags: , , ,
Read the full story »
[ by | Oct 20, 2011 11:02 am | 62 Comments ]
Pat’s Place: I Want My Money Back!

One week ago, I learned that the autologous stem cell transplant I endured this summer at Moffitt Cancer Center in Tampa, Florida, has most likely failed.

What do I mean by “failed?”  I entered the hospital with a monoclonal protein (M-spike) reading of 0.2.  There was also no trace of myeloma in my bone marrow.  Now--100 days later--my M-spike is an alarming 0.5.

My wife Pattie and my doctors were stunned.  What percentage of auto transplant patients with extremely low …

Tags: , , ,
Read the full story »
[ by | Oct 13, 2011 11:38 am | 23 Comments ]
Pat’s Place: Things You Can Do To Take Control Of Your Multiple Myeloma Therapy

Last week I discussed the advantages and disadvantages of a growing number of multiple myeloma therapy options.

How could there be any disadvantages to more options?  I mentioned how even oncologists and hematologists that specialize in treating multiple myeloma will only be guessing when deciding which drugs to use, when, and at what dose.

Then I suggested how with choice comes responsibility.  Responsibility for the patient and caregiver to learn as much as they can about therapy options to …

Tags: , ,
Read the full story »