Pat Killingsworth's Archive

Pat Killingsworth wrote a regular column for The Myeloma Beacon from April, 2010 to February, 2016. He was diagnosed with multiple myeloma in April, 2007 at the age of 51. He initially achieved a complete response to treatment with a combination of extensive radiation and continuous drug-based therapy. Four years after his diagnosis, Pat's disease returned, and he underwent a series of additional treatments, including a total of three autologous stem cell transplants at different times. Unfortunately, Pat passed away on his 60th birthday in February, 2016. By that time, however, Pat had made a significant impact on the lives of many patients and caregivers through his extensive writing and speaking about multiple myeloma. Pat's efforts were supported and made possible in many ways by his wife Pattie, who is also a cancer survivor, and is still cancer-free today.

Pat Killingsworth has written 140 article(s) .

[ by | Jul 5, 2012 3:37 pm | 10 Comments ]
Pat’s Place: Tips For Patients And Caregivers

After writing with a broad brush about caregivers from a patient’s perspective last month, I promised to “think back and dig deep to remember how I felt and coped when I wore a caregiver’s hat” while I watched over and tried to help my lovely wife, Pattie, while she battled her cancer.

Being cared-for by my wife – and having taken care of her while she battled three different cancers for over six years – I have a somewhat …

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[ by | May 31, 2012 11:01 am | 10 Comments ]
Pat’s Place: Find A Way To Take Care Of Your Caregiver

Do you remember reading about or watching the video of Randy Pausch a few years back?  He’s the dynamic Carnegie Mellon professor who became famous after he was diagnosed with pancreatic cancer — and then gave an incredible lecture, “The Last Lecture,” about his impending death.  A video of his talk went viral — before viral was even cool.

Randy lived and died with such grace that it is easy to forget that he had a wife and caregiver, …

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[ by | May 3, 2012 11:31 am | 15 Comments ]
Pat’s Place:  Have You Thanked Your Oncology Nurses Lately?

When we were kids, I bet almost no one ever said, “I want to be an oncology nurse when I grow up!”

All nurses are important.  But oncology nurses are special.  To spend four or five days a week doing hands-on work with cancer patients can be a thankless job.  Sure, there are lots of victories these days – patients are living longer than ever after receiving treatment for most cancers.   But losing patients who have invariably become friends can’t …

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[ by | Apr 5, 2012 10:01 am | 25 Comments ]
Pat's Place: What Would I Do If I Didn't Have Multiple Myeloma?

This week marks an important milestone along my multiple myeloma journey. It has now been five years since I was first diagnosed.

Five years! Not bad, considering the median life expectancy at the time was less than four.

But that only sets the stage for the topic of my column this month.

Several days ago, a “myeloma friend” and I got together to watch a spring training baseball game. What a beautiful setting along Florida's Gulf Coast! The Toronto Blue …

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[ by | Mar 5, 2012 11:06 am | 40 Comments ]
Pat's Place: Why Should A Myeloma Patient Get A Second Opinion?

I find myself frequently advising multiple myeloma patients to “get a second opinion from a myeloma specialist before making a major therapy decision.”

You might ask, “Why should I bother to get a second opinion?”

My response is: why not get a second opinion from a myeloma specialist?

But I hear plenty of reasons and excuses.

“There isn't a major cancer center near me.”

“I like and trust my doctor, so why not just do what he or she says?” …

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[ by | Feb 2, 2012 2:02 pm | 31 Comments ]
Pat’s Place: Multiple Myeloma Survivors Need To Take Regular “Myeloma Breaks”

Over the past month, I have once again experienced a wide variety of multiple myeloma-related events that I have heard about over the years.

One thing is for sure:  I don’t recover from sicknesses nearly as well as I used to before my autologous stem cell transplant in July.

Three weeks ago I experienced the worst cold I have had in a decade.  I was able to fight it off in a week or so, but then I was hospitalized this …

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[ by | Jan 5, 2012 1:34 pm | 53 Comments ]
Pat’s Place: My Treatment Side Effects Keep Changing

I learned this week that my post-stem cell transplant consolidation therapy is continuing to work.  But the side effects are becoming less predictable.

My monoclonal protein number — also known as M-spike — has been dropping ever since I began consolidation therapy with Revlimid (lenalidomide), Velcade (bortezomib), and dexamethasone (Decadron), commonly abbreviated as RVD.  After two 6-week treatment cycles, my numbers are back to where they were just before my autologous stem cell transplant.

As many of …

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