Pat Killingsworth's Archive

Pat Killingsworth wrote a regular column for The Myeloma Beacon from April, 2010 to February, 2016. He was diagnosed with multiple myeloma in April, 2007 at the age of 51. He initially achieved a complete response to treatment with a combination of extensive radiation and continuous drug-based therapy. Four years after his diagnosis, Pat's disease returned, and he underwent a series of additional treatments, including a total of three autologous stem cell transplants at different times. Unfortunately, Pat passed away on his 60th birthday in February, 2016. By that time, however, Pat had made a significant impact on the lives of many patients and caregivers through his extensive writing and speaking about multiple myeloma. Pat's efforts were supported and made possible in many ways by his wife Pattie, who is also a cancer survivor, and is still cancer-free today.

Pat Killingsworth has written 140 article(s) .

[ by | Sep 5, 2013 2:53 pm | 23 Comments ]
Pat’s Place: Can’t A Guy Get A Break?

Three months ago, my painful right hip was replaced.  Recovery has been swift and rewarding.  I’m able to kick in the pool again when I swim, take long walks, and not wake up in the middle of the night with my myeloma-ravaged hip joint throbbing.

But all my news on the pain front isn’t good.  Back before I was diag­nosed in 2007, my myeloma had been systematically attacking my bones for years.  My ribs, lower back, pelvis, and right femur …

Tags: , , ,
Read the full story »
[ by | Aug 1, 2013 1:14 pm | 38 Comments ]
Pat’s Place: Risk Versus Reward When Considering A Stem Cell Transplant

In last month’s column, I wrote about how much my perspective on myeloma therapy has changed over the past six years since my diagnosis.  In a nutshell, I’m more willing to try new things and endure troubling side effects now than I was back when I was still a “rookie.”

My attitude about stem cell transplants is a perfect example of this.  I look at stem cell transplants differently now – both allogeneic transplants (using donor stem cells) and …

Tags: , , , , ,
Read the full story »
[ by | Jul 2, 2013 2:42 pm | 22 Comments ]
Pat’s Place: Risk Versus Reward

Side effects are a multiple myeloma survivor’s per­ma­nent companion.  Oh, they may change from month to month and treat­ment to treat­ment, but one way or an­other, you are forced to deal with them.

Doctors always insist you share any negative side effects (there are posi­tive ones?) with them or their nurse im­me­di­ately.  And early on, your on­col­o­gist may be quick to switch you from one therapy to another in order to avoid serious, de­bil­i­tat­ing side effects like severe skin rashes, …

Tags: , , ,
Read the full story »
[ by | Jun 6, 2013 4:35 pm | 10 Comments ]
Pat’s Place: Surviving Cancer Boot Camp

At this time last month, I was preparing to undergo hip replacement surgery.  One month later, I’m pleased to report that the surgery was an awesome success!

I went home two days after my surgery, two days ahead of schedule.  I was walking without a cane in five days and without a limp in ten. And although I still get a bit sore after walking up a long flight of stairs or working out, the pain is far less than …

Tags: , ,
Read the full story »
[ by | May 2, 2013 9:06 am | 30 Comments ]
Pat’s Place: Improving My Quality Of Life

“Your myeloma is stable.”  Short, sweet music to my ears!

I’m not sure she realized it, but my myeloma specialist had just opened up a world of possibilities for me.

Two years ago, I relapsed for the first time.  After taking a year-and-a-half to finally achieve remission again, all were concerned when I relapsed after ten short weeks.  Now, after three months on Velcade (bortezomib) and dexa­metha­sone (Decadron), I waited to find out if that basic …

Tags: , , ,
Read the full story »
[ by | Apr 4, 2013 1:41 pm | 24 Comments ]
Pat’s Place: Don’t Let Denial Stop You From Becoming An Enlightened Myeloma Patient

I just finished re-reading my column from last month on the topic of denial about death and dying.  The column generated so much discussion, I wanted to write a follow-up.

Let me start by clarifying my take on denial:

We all need to grieve or emotionally deal with our diagnosis in whatever way works best for each of us; I would never be so presumptuous as to tell someone how they should do that.

Denial can be a magnificent …

Tags: , ,
Read the full story »
[ by | Mar 7, 2013 11:49 am | 79 Comments ]
Pat's Place: It's Time To Stop Denying The Elephant In The Room, Death And Dying

As a former drug and alcohol counselor, I was trained to identify and deal with the “elephant in the living room”  In other words, the painful reality that everyone would talk around but rarely face.  It might be a family member's alcohol or drug use, domestic violence, or incest. 

Denying a horrifying reality isn't anything new.  But I never expected multiple myeloma to make the top ten list! That is, no one ever wants to discuss dying from myeloma. …

Tags: , ,
Read the full story »