
Three months ago, my painful right hip was replaced. Recovery has been swift and rewarding. I’m able to kick in the pool again when I swim, take long walks, and not wake up in the middle of the night with my myeloma-ravaged hip joint throbbing.
But all my news on the pain front isn’t good. Back before I was diagnosed in 2007, my myeloma had been systematically attacking my bones for years. My ribs, lower back, pelvis, and right femur …
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In last month’s column, I wrote about how much my perspective on myeloma therapy has changed over the past six years since my diagnosis. In a nutshell, I’m more willing to try new things and endure troubling side effects now than I was back when I was still a “rookie.”
My attitude about stem cell transplants is a perfect example of this. I look at stem cell transplants differently now – both allogeneic transplants (using donor stem cells) and …
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Side effects are a multiple myeloma survivor’s permanent companion. Oh, they may change from month to month and treatment to treatment, but one way or another, you are forced to deal with them.
Doctors always insist you share any negative side effects (there are positive ones?) with them or their nurse immediately. And early on, your oncologist may be quick to switch you from one therapy to another in order to avoid serious, debilitating side effects like severe skin rashes, …
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At this time last month, I was preparing to undergo hip replacement surgery. One month later, I’m pleased to report that the surgery was an awesome success!
I went home two days after my surgery, two days ahead of schedule. I was walking without a cane in five days and without a limp in ten. And although I still get a bit sore after walking up a long flight of stairs or working out, the pain is far less than …
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“Your myeloma is stable.” Short, sweet music to my ears!
I’m not sure she realized it, but my myeloma specialist had just opened up a world of possibilities for me.
Two years ago, I relapsed for the first time. After taking a year-and-a-half to finally achieve remission again, all were concerned when I relapsed after ten short weeks. Now, after three months on Velcade (bortezomib) and dexamethasone (Decadron), I waited to find out if that basic …
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I just finished re-reading my column from last month on the topic of denial about death and dying. The column generated so much discussion, I wanted to write a follow-up.
Let me start by clarifying my take on denial:
We all need to grieve or emotionally deal with our diagnosis in whatever way works best for each of us; I would never be so presumptuous as to tell someone how they should do that.
Denial can be a magnificent …
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As a former drug and alcohol counselor, I was trained to identify and deal with the “elephant in the living room” In other words, the painful reality that everyone would talk around but rarely face. It might be a family member's alcohol or drug use, domestic violence, or incest.
Denying a horrifying reality isn't anything new. But I never expected multiple myeloma to make the top ten list! That is, no one ever wants to discuss dying from myeloma. …
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