Articles tagged with: Pat's Place

News»

[ by | Feb 11, 2016 10:42 pm | 88 Comments ]
Remembering Pat Killingsworth

The multiple myeloma community has lost one of its best-known patient voices.

Pat Killingsworth died earlier today, his 60th birthday, of complications stemming from multiple myeloma and the treatments he had received for the disease. He was at Baptist Medical Center in Jacksonville, Florida, in the company of his wife Pattie and other family members.

Pat was diagnosed with multiple myeloma in April, 2007. Soon after his diag­nosis, he began writing regularly online about the disease and his experience with it, and in 2010 he became the Beacon's first patient columnist.

Since …

Read the full story »

Opinion»

[ by | Feb 4, 2016 12:14 pm | 36 Comments ]
Pat’s Place: Dare I Dream Again?

I have some wonderful news to share. My last PET scan showed no active myeloma anywhere. None in my existing lesions, and the extramedullary tumor in my groin is gone. No new lesions.

Given that I’ve become a nonsecretor over time, tests on my blood and urine don’t help much in tracking my myeloma. My light chains are in the normal range, whether my myeloma is active or not. Only a PET scan and bone marrow biopsy can help my myeloma specialist follow along.

At 100 days post transplant, my weight is …

Read the full story »

Opinion»

[ by | Dec 23, 2015 3:30 pm | 36 Comments ]
Pat’s Place: Holiday Cheer

Those of you who have been following my story remember how carefully my wife Pattie and I weighed the pros and cons before deciding I would proceed with a salvage autologous stem cell transplant.

The transplant this summer worked so well that my myeloma specialist strongly recommended that we repeat it this fall.

There was just a touch of measurable multiple myeloma left. Why not stick with a therapy that was working? Hit my myeloma hard while it’s down.

Once again, we agreed with his logic. Just as I began to recover …

Read the full story »

Opinion»

[ by | Nov 6, 2015 5:47 pm | 23 Comments ]
Pat’s Place: The Power Of Momentum

In my column last month, I shared details of my plan to push the envelope and undergo back-to-back, or tandem, autologous stem cell transplants.

I made a forceful point in that column about the importance of living in the moment; not looking ahead to the point that I lost precious days in the weeks leading up to the second transplant.

For the most part, I was pretty good at living in the moment. For example, I squeezed in a trip to Madison with my wife Pattie to see a University of …

Read the full story »

Opinion»

[ by | Oct 3, 2015 6:34 pm | 26 Comments ]
Pat’s Place: Stem Cell Transplant – Let’s Play Two

Last month I promised an update on how I responded to the salvage au­tol­ogous stem cell transplant I underwent in July. The news is good!

Although some active myeloma remains in the occipital lesion at the base of my skull, and in both hips, all lesions have significantly improved. A half dozen other lesions are clear. And the extramedullary plasmacytoma that was growing in the lymph nodes in my groin? Gone!

I had a 0.2 g/dL M-spike going in and coming out of the transplant. But my spe­cial­ist feels that’s of no …

Read the full story »

Opinion»

[ by | Sep 8, 2015 8:28 pm | 28 Comments ]
Pat’s Place:  Always More Questions Than Answers

Let me start out with a quick update about how I’m doing after my salvage transplant earlier this summer.

As I become more active, I’m experiencing more bone pain. It’s hard to know if the pain is caused by old lesions or newly formed ones. I’ll know more later this week after having some tests done.

I’m feeling much stronger; I’m walking, swimming, and doing intense physical therapy. I lost a lot of muscle mass over the summer, but I see improvement already. I’m cautiously optimistic about my future.

Becoming …

Read the full story »

Opinion»

[ by | Aug 10, 2015 4:30 pm | 44 Comments ]
Pat’s Place: I’m Home!

It’s been 37 long, hard days away from home for my salvage transplant. The good news: I’m home early!

I left last week facing a very difficult decision: Should I take my specialist’s advice and move forward with a second, tandem, stem cell transplant?

My doctor felt if the first one didn’t work, well, skip the second transplant. But if the one I just had got most, or all, of my myeloma, crush it with a second transplant.

“Don’t make a decision now,” he told me and my wife Pattie at our …

Read the full story »