Articles tagged with: Patient Column
Opinion»
A freezing rain was coming down that mid-January 2009 morning as I arrived at the hospital to continue round number two of induction chemotherapy in my ongoing battle against multiple myeloma.
Although I was feeling the unpleasant side effects and exhaustion of the rather aggressive treatment, I was nonetheless in good spirits.
My fingers were crossed that it would be an uncomplicated, give-some-blood, get-some-chemo, and skedaddle-on-home, kind of day. That was the plan anyway.
Sharing an umbrella, my wife and I sloshed up the wet concrete sidewalk to the infusion center.
To …
Opinion»
Sometimes newly diagnosed patients will contact me, looking for advice. I love connecting with other patients, but when it comes to advice for the newly diagnosed, I always have to sit and think for a while. What are the most important things they should know? What do I wish I had known when I was diagnosed back in 2005?
I know that every case of multiple myeloma is different, but here are the things I have learned in my eight-plus years with the disease:
You’re the boss of this cancer business. I …
Opinion»
This “Manhattan Tale” is the first that I have written outside of Manhattan.
My wife and I are spending a few days in Washington, D.C., celebrating my brother-in-law’s 70th birthday. He and his wife live in Florida, and they have come up to DC for a chilly week to tour the sites of Washington, my hometown.
Just as the 20-degree cold we had a few nights ago gave a jolt to my brother-in-law and his wife, who are used to the tropical climate of southern Florida, this trip to Washington has given …
Opinion»
I have started 2014 in the throes of a relapse that has dogged my heels throughout the fall. When I see my oncologist this month, we will be discussing treatment and, presumably, starting it soon thereafter.
Because the relapse is steadily increasing and my energy and overall health are steadily diminishing, we spent the holidays quietly. (Well, quietly after my husband finished five rehearsals and five performances in the space of three weeks.) When coworkers ask what I did for Christmas, I smile and say “nothing.” They think I am joking.
Similarly, …
Opinion»
Hello, my name is Steve Mohr. I am 57 years old, and I was diagnosed with monoclonal gammopathy of undetermined significance (MGUS) in December of 2011, which was quickly revised to a diagnosis of multiple myeloma in April of 2012.
After reading this website almost daily since my initial diagnosis, I feel that, perhaps like every columnist who writes for The Beacon, I may be able to offer a helpful perspective to others with multiple myeloma, especially those newly diagnosed with the disease, and those about to undergo treatment.
As was the …
Opinion»
I recently had the opportunity to take a tour of the myeloma research laboratory at our local cancer center. During that tour, I got a close look at the latest myeloma research that is being done.
First, we were shown the DNA sequencer. This is an expensive piece of equipment, paid for by generous donations. It cost about half a million dollars and is set up in a separate room to avoid any cross-contamination from other lab materials and people in the area.
There are many different types of DNA sequencers available. …
Opinion»
A medley of my local multiple myeloma buddies and I occasionally gather together to shoot the breeze over mugs of high-priced coffee and an enticing assortment of sweet treats.
Accustomed to dietary restrictions, our klatch has determined that one of those delectable goodies is perfectly suitable for folks like us to consume -- in moderation, of course.
You see, way back when, some astute dessert engineers cleverly inserted a large zero-calorie hole smack dab in the middle of said treat. You read it correctly -- a large zero-calorie hole! Genius!
What? You’re …
