Articles tagged with: Patient Column

Opinion»

[ by | Aug 5, 2014 4:31 pm | 13 Comments ]
Sean’s Burgundy Thread: Old Blue Eyes

It was New Year’s Eve 2008, and I was hunkered down in a small one-bedroom apartment that I’d rented in Little Rock during my ten-month clinical trial for mul­ti­ple myeloma.

My wife Karen was splitting her time between looking after me in Arkansas and being with our two young daughters – and keeping her teaching job – back home in Missouri. I hadn’t seen the kiddos since I’d begun my medical ad­ven­tures nearly a month earlier.

Having spent the Christmas holidays with family in Chicago, the girls were excited to venture south to Little …

Read the full story »

Opinion»

[ by | Jul 31, 2014 2:19 pm | 10 Comments ]
Myeloma Mom: Playing The Numbers Game

For my birthday a few months ago, my husband got me a Fitbit. I’m ob­sessed with it.

A Fitbit is a small device you wear inside a band that goes around your wrist. It has magical powers and can tell when you’re walking or running, and it tracks your activity throughout the day. The goal is to take at least 10,000 steps every day.

Once you hit 10,000 steps, the Fitbit lights up and buzzes happily. When you sync your device to the Fitbit web site after hitting 10,000 steps, you’re rewarded …

Read the full story »

Opinion»

[ by | Jul 28, 2014 6:44 pm | 53 Comments ]
Pat’s Place: Refractory To Revlimid & Velcade - What’s Next?

Earlier this month, I admitted something that wasn’t easy for me: I’m refractory to both Revlimid and Velcade.

So what’s the big deal?  There are plenty of other drugs I haven’t tried.

True, my outlook isn’t as dire as it would have been three or four years ago.  I recall attending a pre­sen­ta­tion at the American Society of Hema­tol­ogy’s 2011 annual meeting in San Diego. Pomalyst and Kyprolis weren’t approved yet by the U.S. Food and Drug Administration. But a panel of international myeloma experts, including the IMF’s Dr. Brian Durie, French hematologist Dr. …

Read the full story »

Opinion»

[ by | Jul 25, 2014 9:21 am | 11 Comments ]
Mohr's Myeloma Musings: Then And Now

One month ago, I was discharged from the hospital after having a stem cell transplant, so I obviously am not lacking for material to write about in this col­umn.

As I reflect back on my experiences, I can't help but remember a chance en­coun­ter that I had with another myeloma patient who I met at my last Zometa (zole­dron­ic acid) treatment three weeks before my transplant.

On this particular day, the chemo wing at the cancer center was very busy and I shared a room with another gentleman. He was …

Read the full story »

Opinion»

[ by | Jul 20, 2014 11:41 am | 4 Comments ]
Myeloma, Party Of Two:  Cheering For The World Cup (And The Myeloma Community)

“Futbol,” or soccer as it’s known on this side of the pond, is really catch­ing on in the United States.

Over the last few weeks, many Americans, myself included, have been riveted to our televisions as we cheered for team USA in the FIFA World Cup.

It seems that soccer fever is so pervasive that even the clergy have not been spared the affliction. I recently heard a minister discuss in his sermon the dif­fer­ent styles of play of the World Cup teams. The minister also pointed out that we could learn something from …

Read the full story »

Opinion»

[ by | Jul 17, 2014 3:58 pm | 20 Comments ]
Myeloma In Paradise: Carpe Diem

Do you ever wonder if you’re getting all you can get out of life? As multiple myeloma patients, this question is both timely and important to our ability to cope with this disease.

As I mentioned in my first column last month, I am a 51-year-old man who was diagnosed with early-stage multiple myeloma just over two years ago.

My experience was a little atypical in that I didn’t have any bone lesions or other signs of cancer prior to my diagnosis. Instead, I had a recurring and somewhat regular bout …

Read the full story »

Opinion»

[ by | Jul 15, 2014 2:21 pm | 17 Comments ]
Letters From Cancerland: Song Of The Open Road

We have been trying to plan a small vacation. The operative phrase here is “small.”

A friend of ours is getting married in August in a Monday evening cere­mony in the Cincinnati area. That means an overnight stay and puts us about 120 miles south of our front door. At the end of the same week, we need to be in Chicago for two nights of concerts, including a world premiere.

Those two events, bookends to the week, pretty much chop the work week into little tiny pieces. So why not take …

Read the full story »