Articles tagged with: Patient Column
Opinion»
Some of my experiences at work lately have reminded me of certain aspects of life as a multiple myeloma survivor. In both cases, decisions that can have major repercussions must be made, sometimes on short notice, based on information that is at best sketchy, and at worst contradictory or misleading. While the details of the two cases are totally different, the same sort of conundrum arises in both cases.
In multiple myeloma, a key decision that many patients face periodically is whether to continue with their current treatment or make some sort …
Opinion»
No snide remarks, please, in regard to the question in this column’s title. It’s a bit rhetorical – I don’t expect a response. Instead, the question is a play on words, as you’ll shortly see.
Regular readers of my column and my postings in the Beacon’s forum know that I make no secret of my belief in the value of exercise. Clearly, exercise produces all kinds of benefits. It strengthens the bones and muscles. It promotes cardiovascular health. And it has been shown to improve mental health by …
Opinion»
As I mentioned in my first column last month, I was pretty ill when I was diagnosed with multiple myeloma in June 2015. Despite numerous visits to doctors, physiotherapists, chiropractors, and massage therapists, it took months for me to be referred to a hematology department. I know from reading The Beacon that this is far from a unique experience, and many people unfortunately may relate to this experience.
At the time when I discovered that I had multiple myeloma, my husband Graham was working in Singapore. I had gone back to …
Opinion»
It is gray and windy here, and the sun rises late. The weather nevertheless is still fine for me to go on walks, sometimes accompanied by my grandpuppy. I have had lots to mull over on these walks the past month, since much has happened to me medically speaking.
As you may remember from my last column, I was diagnosed with ductal carcinoma in situ (DCIS) that required surgery. My choices were either breast-conserving surgery plus radiation, or a total mastectomy on one side. Since the first option is said to …
Opinion»
At the end of my previous column, I explained that the title of my column, “A Northwest Lens On Myeloma,” refers to where I live – the U.S. Northwest – and one of the passions in my life: photography.
I started seriously shooting photographs in 2009. By 2011, I was printing the best of my work and showing it regularly at regional art shows – first for judged prizes, and then for sale to the public.
Unfortunately, my myeloma diagnosis in 2015 significantly cut into my ability to participate in art …
Opinion»
This year, the autumn colors have been unusually magnificent here in Colorado. I believe this Indian summer has been the finest show in recent years.
The riot of colors on the hillsides created a contrast to what was happening to my body. Multiple myeloma cells were advancing aggressively and reducing the production of normal blood cells. I became acutely ill with severe anemia, easy bleeding, and shortness of breath.
My husband Mark and I had planned a three-week trip to the East Coast for the end of September to revisit the life …
Opinion»
Recently, some close family friends received some bad news. Our good friend – I’ll call her Betty – has been on the novel drug Imbruvica (ibrutinib) for her aggressive lymphoma. Betty was on the drug for 21 months, and we were all hopeful that it would continue to keep her lymphoma at bay for many years to come. Unfortunately, she was just told that her lymphoma has returned, as evidenced by numerous tumors in her abdomen and back.
The plan was for her to go into a clinical trial if she could do …

