Articles tagged with: Myeloma Lessons
Opinion»

Let me get this out of the way right at the outset: I am a fortunate person.
It is true that I have an incurable cancer. At the time of my initial diagnosis, I was suffering from pretty significant bone pain, especially in my ribs. And during the six months of my induction treatment, I dealt with some unpleasant side effects, especially the craziness and sleeplessness caused by dexamethasone (Decadron).
I went through a stem cell transplant, which was taxing, brought on severe fatigue, and caused painful gastrointestinal side effects. …
Opinion»

In December of every year, we are inundated with “year in review” lists. The best movies and music albums; notable marriages and deaths; advances in medicine and science. Frankly, I never have been much interested in reviewing the past, choosing instead to look ahead.
But in thinking about the two years since I was diagnosed with multiple myeloma at the end of June 2013, I see that much can be learned from looking back at my experiences, including what I have done right and what I’ve done wrong.
I have captioned this …
Opinion»

“You definitely have ONJ.”
Those were the shocking words that came out of the mouth of my oral surgeon about two months ago. The news that I had osteonecrosis of the jaw (ONJ) was totally unexpected.
Granted, I didn’t just happen to aimlessly wander into an oral surgeon’s office, open my mouth, and ask him what he saw. But I was there to have him rule out ONJ.
Instead, he ruled it in.
But his demeanor and what he said thereafter was equally unexpected. He said that he was not …
Opinion»

My primary audience for these columns is the myeloma patients and their caregivers who frequent The Myeloma Beacon. But, as I am sure is the case with my fellow columnists, I share my column with friends and relatives by email and by posting links on social media. For that reason, I try to make the subjects – although always myeloma-related – somewhat universal.
At the risk of alienating my non-myeloma audience, this month I write about a very specific myeloma-related issue: diarrhea.
And not just any diarrhea, but diarrhea brought about by the myeloma …
Opinion»

As happens with most myeloma patients, my diagnosis was delayed. There were signs of the disease that, in retrospect, should have prompted further investigation. But, because of my and my doctors’ unfamiliarity with the disease, we did not do the testing necessary for a diagnosis until there had been bone damage.
This is not unusual. The type of bone pain myeloma causes is easily confused with a host of musculoskeletal problems that are frequently treated with chiropractic or physical therapy regimens.
Once the real diagnosis comes in, many of us kick …
Opinion»

At the end of my last column, I teased that one of the most positive outgrowths of my myeloma diagnosis was that it fostered an unexpected reunion. This is that story.
I was sitting in my hospital room on a Sunday morning the day after I had been told that I likely had multiple myeloma. I remained hospitalized following my Friday night / Saturday morning transfusion experience so that I could get a bone marrow biopsy first thing Monday morning.
My girlfriend (now fiancée) Audrey had gone home to shower and …
Opinion»

On January 28, 2014, I was sitting comfortably in a chair in my hospital room reading on a laptop. It was about 30 minutes after noon when the door opened and the “team” entered. And quite a team it was.
Six team members - nurses, technicians, and a physician’s assistant - wheeled in a cart loaded with a cooler, a tub with heated water and various tubes, syringes, and other equipment, including a dish of mints. Despite the assault on my senses this procession produced, I was relatively calm.
The day before, …