Articles tagged with: Myeloma Dispatches
Opinion»
I am slogging through a new battlefield of treatment.
Weekly for 10 weeks, I’m receiving intravenous Darzalex (daratumumab) over a five-hour interval. One hour before the infusion, I take a cocktail of Tylenol (acetaminophen, paracetamol), metoclopramide, Benadryl (diphenhydramine), dexamethasone, and intravenous methylprednisolone. This combination should decrease the risk of an infusion reaction. I'm told that infusion reactions are common with the first two Darzalex infusions. Although I suffered a scary reaction during the first infusion, I have not experienced a reaction with the following ones.
On some weeks, I receive …
Opinion»
This year, the autumn colors have been unusually magnificent here in Colorado. I believe this Indian summer has been the finest show in recent years.
The riot of colors on the hillsides created a contrast to what was happening to my body. Multiple myeloma cells were advancing aggressively and reducing the production of normal blood cells. I became acutely ill with severe anemia, easy bleeding, and shortness of breath.
My husband Mark and I had planned a three-week trip to the East Coast for the end of September to revisit the life …
Opinion»
I am lying in a treatment room with a large window that looks onto a fall-colored ridge. The room is crowded. My husband is with me, leaning over holding my hand, as are two familiar oncology nurses, a young pharmacist, and my long-time, faithful oncologist. Everyone looks worried.
I am in the midst of experiencing fever, chills, and then the worst, vomiting. Even though I am the one with the awful symptoms, I feel the most distant. Simple nursing maneuvers soon help: warm blankets wrap me like tamale, the drip of the new …
Opinion»
I am lying in a windowless room with dark red blood dripping steadily into my body. I do not want to be here. Yet here I am. Once again I feel that I’m traveling backwards in time. Six years ago, I was diagnosed with multiple myeloma after having severe anemia. Right before and after my stem cell transplant, I received multiple infusions of packed red blood cells and platelets. That time remains a blur for me. Time travel can be.
Yet in the five years since my transplant, I have not needed any blood transfusions. …
Opinion»
Six weeks ago, I traveled to a new country in my very own myeloma land. For the first time in five years since my stem cell transplant, I experienced clinical symptoms: low hemoglobin levels, low white blood cell counts, and very low platelet levels. These symptoms are invisible to others. I look the same, but I am experiencing fatigue, shortness of breath, and bruises without any injury.
The symptoms came as a surprise to both me and my clinical team. This new journey began when I took a six-week break from treatment …
Opinion»
“How are you?”
This innocent, well-intentioned question often trips me up.
I have lived in a small Colorado town for the last 40 years. Until recently, I was a nursing professor in the same valley for 15 of those 40 years. In addition, I have been a very active participant in this mountain valley community. I was a volunteer with the local fire department for years, I belong to the same small church, and I volunteer in schools and the local art organization. For fun, I participate in a local triathlon team. …
Opinion»
As I mentioned in my previous column, I started treatment with the newly approved myeloma drug Empliciti (elotuzumab) in February. I thought I would share more details about my experiences with the drug so far.
Before I started treatment with Empliciti, I had enjoyed a drug holiday for the previous three months. I appreciated the break from the side effects of drugs and numerous trips to the cancer center.
Before the drug holiday, I was on Kyprolis (carfilzomib), Revlimid (lenalidomide) and dexamethasone (Decadron) for …
