Articles tagged with: Me vs MM
Opinion»

Perhaps the title of this column more appropriately should be "Life After CRD," since I've now completed 24 cycles of Kyprolis (carfilzomib), Revlimid (lenalidomide), and dexamethasone (Decadron), commonly referred to as CRD, as part of a clinical trial for newly diagnosed patients.
However, since dexamethasone seemed to be the predominate source of my side effects, and because I liked the play on words, I went with the title as shown.
So, I've completed the clinical trial, I've reached stringent complete response, and I've won the first …
Opinion»

The end of this month marks my second anniversary since being diagnosed with multiple myeloma. It's also the end of my induction therapy - a two-year clinical trial with Kyprolis (carfilzomib), Revlimid (lenalidomide), and dexamethasone, commonly referred to as CRD, for newly diagnosed patients.
What a long, strange trip it's been - one I'll reflect on briefly for those who aren't familiar with it, then I'll pass along a few tidbits I picked up along the way, and finish with what's next.
By far, …
Opinion»

As I approach the end of my induction therapy and the clinical trial I've been on, I find myself reflecting on the past two years since I was diagnosed with multiple myeloma.
One of the consequences of the diagnosis that I've come to recognize – and which I most likely will have to accept even more in the future – is how humbling dealing with cancer can be.
Sure, there are the little things, like figuring out how to manage a 24-hour urine collection that includes a full day at work, or having to …
Opinion»

I mentioned in a recent column how the topics for my columns crop up from a variety of sources. This month's topic formed in my head (as you might expect, during a dex-day) due to the convergence of three separate, but related items and events:
A recent posting to one of the Beacon columns or forums indicating the site is not much more than a place for everyone to come and drown their sorrows.
A conversation I had with one of my sons that's been an ongoing debate as to whether interacting …
Opinion»

I recently had one of the vivid dreams I've tended to experience ever since being on chemotherapy for multiple myeloma.
I have so many different drugs flowing through me at any given time that I can't be sure which one causes the dreams. Or perhaps they are due to some particular combination. I was also fighting another sinus infection at the time, so the antibiotics, decongestants, and cough suppressants I was taking may also have been a factor.
Whatever the cause, it's not as relevant as the emotions evoked by the dream, …
Opinion»

Many of the topics I write about start out as random things in my life that eventually grow into a column. Sometimes the seed is planted by a comment someone makes, or perhaps something I read, or in at least one case by a dream.
The idea for this month's column came to me when I recently heard the song "Once In A Lifetime" by the Talking Heads, which includes the line "You may ask yourself, well, how did I get here?"
Or in other words, "Why do I have multiple myeloma?" …
Opinion»

One of the first questions most of us probably ask after being diagnosed with multiple myeloma is "How long do I have?", or some derivative thereof. For me, I think the question came right after asking what multiple myeloma is, and whether it's curable.
Perhaps it might be better to take a more philosophical approach and respond by asking "How long does anyone have?", reflecting the fact that life is a crap shoot, stuff happens, and we truly don't know when we will die.
After all, barring any knowledge of the unforeseen, …