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[Aug 15, 2019 4:56 pm | 12 Comments]
A Northwest Lens On Myeloma: Anniversary And Decision Point

July 22 marked the third anniversary of my au­tol­o­gous (own) stem cell trans­plant. Honestly, although the treat­ment went well, when I was sent home, three-years in the future seemed like a very long time away. I wouldn't have been surprised if a relapse had arrived before this day.

Today, how­ever, I'm still enjoying a com­plete response and rel­a­tive­ly good health with remarkably few side effects. My perspective on the future also is much brighter, and three more years of …

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[Aug 13, 2019 5:36 pm | One Comment]
Number And Type Of Stem Cell Transplants Carried Out Each Year For Multiple Myeloma Vary Markedly Across U.S. Cancer Centers

Statistics compiled by The Myeloma Beacon show there is sub­stan­tial variation across U.S. cancer centers in the num­ber of au­tol­o­gous (own) stem cell trans­plants the centers per­form each year for people with mul­ti­ple myeloma.

The five busiest U.S. centers in terms of au­tol­o­gous trans­plants for mul­ti­ple myeloma carried out an average of 236 such trans­plants per center in 2017, the latest year for which data are pub­licly avail­able. That is a pace equal to almost one trans­plant per weekday at …

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[Aug 6, 2019 12:53 pm | 10 Comments]
Myeloma, Party Of Two: Moonshots

Here in “Space City,” we’ve been celebrating an im­por­tant mile­stone. It was 50 years ago when the unthinkable was accomplished, and we became a lunar people. On July 20, 1969 at 10:56 p.m., astronauts Neil Armstrong and Edwin “Buzz” Aldrin became the first men to walk on the Moon. With astronaut Michael Collins piloting the capsule, Houston Capcom monitoring the mis­sion, and more than half a billion people watching on television, Armstrong climbed down the ladder and proclaimed: "That's one small step …

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[Jul 25, 2019 11:46 am | 15 Comments]
Letters From Cancerland: “I Can Swim”

I was recently in an interview (part of the team of interviewers, not the interviewee) and I heard the best answer ever to a dif­fi­cult question. It was de­liv­ered without the can­di­date missing a beat.

I described the situation into which the can­di­date, if chosen, would be placed. It is an external pro­gram, there have been issues outside of our control that have created barriers and obstacles for predecessors in the position, and while there would be strong internal sup­port, …

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[Jul 15, 2019 6:53 pm | 21 Comments]
Northern Lights: Celebrating A Decade Since Diagnosis

It’s summer here in Calgary, and sunshine and showers are alter­nat­ing. Everything is green, and the gardens are a joy to behold. It’s not too warm; in fact, our daytime high tem­per­a­tures on the colder days have been only 52 degrees Fahrenheit (11 degrees Celsius).

This is good weather for walking, and my husband and I got out cycling on Canada Day, July 1. We went along the Bow River path­way for a few miles, and really enjoyed seeing …

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[Jun 27, 2019 7:10 pm | 11 Comments]
Living For Lamingtons: It’s Nobody’s Fault

I think that when you are diag­nosed with a serious con­di­tion such as multiple myeloma, it’s probably quite natural to wonder why this has hap­pened.

The medical and popular media are con­stantly suggesting that we follow particular regi­mens in order to keep ourselves healthy and avoid getting cancer. Lots of 'un­healthy' behaviors are thought to in­crease our risk of getting a range of lifestyle-related cancers. But there is no evi­dence that multiple myeloma is a 'preventable' cancer. Nothing that we …

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[Jun 19, 2019 6:03 pm | 6 Comments]
Myeloma, Party Of Two: Accentuate The Positive

When you’re looking for wisdom, it’s hard to beat the tried and true lyrics from the jazz standards. One such standard was recorded by Ella Fitzgerald (among others), and it’s called, “Ac-Cent-Tchu-Ate the Positive.” The song begins with this advice:

You got to ac-cent-tchu-ate the pos­i­tive; E-lim-i-nate the neg­a­tive; And latch on to the affirmative; Don't mess with mister inbetween.

You got to spread joy up to the maximum; Bring gloom down to the minimum; Have faith, or pandemonium; Liable …