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[Feb 12, 2015 2:39 pm | 23 Comments]
Myeloma In Paradise: A State of Confusion

I’m confused.

I am a 52-year old man who has always been driven by a sense of duty to my business and career. Earning enough money to support myself and/or my family has been one of the most important things in my life since I was about nine years old.

You see, I was one of those annoying kids who showed up at your door every couple of months trying to sell the latest in greeting cards, seeds, or some …

Headline, News »

[Feb 11, 2015 8:25 am | 13 Comments]
Ixazomib Succeeds In Key Phase 3 Relapsed Multiple Myeloma Trial – Approval Filings Expected Later This Year

Takeda Oncology yesterday announced posi­tive results from a key trial testing the in­ves­ti­ga­tional drug ixazomib in re­lapsed multiple myeloma patients.

Participants in the large Phase 3 ixazomib trial, known as the TOUR­MA­LINE MM-1 study, received one of two possible treat­ment regi­mens. One group was treated with ixazomib, Revlimid (lena­lido­mide), and dexa­metha­sone (Decadron), while the other group received a placebo (sugar pill), Revlimid, and dexa­metha­sone.

Investigators conducting the trial recently carried out the first planned …

Headline, Opinion »

[Feb 9, 2015 10:19 am | 9 Comments]
Myeloma Lessons: Happy Anniversary … To Me!

On January 28, 2014, I was sitting comfortably in a chair in my hospital room reading on a laptop. It was about 30 minutes after noon when the door opened and the “team” entered. And quite a team it was.

Six team members - nurses, technicians, and a physician’s assistant - wheeled in a cart loaded with a cooler, a tub with heated water and various tubes, syringes, and other equipment, including a dish of mints. Despite the assault on …

Headline, Opinion »

[Feb 5, 2015 4:54 pm | 31 Comments]
Pat’s Place:  Don’t Let Denial Cost You Your Life

An oncologist you’ve just met says you have multiple myeloma, an incurable cancer of the bone marrow. He or she reminds you that you aren’t a sta­tis­tic. “With luck,” your oncologist says, “You can live six or seven years — even longer. We should start treatment immediately.”

You and your caregiver frantically hit the Internet, hopefully viewing sites rec­om­mended by your doctor first. Overall survival statistics are all over the map: from three or four years to a decade or more.  Much of the …

Headline, Opinion »

[Feb 3, 2015 1:19 pm | 6 Comments]
Sean’s Burgundy Thread: Schedules, Scans, And Superheroes

I was still a bit drowsy when I arrived at the hospital in Little Rock, Arkansas, for my recent mid-January, 6:30 a.m. PET scan appointment. As an inveterate night owl, I was less than thrilled about having to beat the sun out of bed and the early bird to the worm, but, nonetheless, I was up-and-at-‘em-Atom-Ant, ready to face the typically long first day of a myeloma check-up.

A text from my school-age daughters and elementary principal wife back home …

Headline, News, Opinion »

[Jan 30, 2015 3:07 pm | 4 Comments]
The Myeloma Quiz – January 2015

A new year is upon us.  I hope it has started well for everybody, and that all had a great holiday season!

The last few weeks of 2014 were a hap­pen­ing time for the mul­ti­ple myeloma com­munity. The short span of time witnessed the pub­li­ca­tion of up­dated criteria for the diag­nosis of mul­ti­ple myeloma from the Inter­na­tional Myeloma Work­ing Group (IMWG). In addi­tion, the 56th annual meeting of the American Society of He­ma­tol­ogy (ASH) took place in San Francisco, with …

Headline, Opinion »

[Jan 28, 2015 2:13 pm | 13 Comments]
Myeloma, Party Of Two: The Time To Be Happy Is Now

The winds of change are blowing, as they do for all of us – myeloma patients, caregivers, and healthy people alike – and so I answer with the activities of normalcy. Lately that means putting away the holiday décor.

There’s something comforting to me about putting everything back in its place, for as much as I love gazing upon my Christmas villages or the white porcelain ornaments on the tree, I always welcome a return to un­cluttered counters and furniture …