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I feel fortunate that, as a myeloma patient, I still am able to lead a relatively normal life at this point in time. I am feeling particularly well right now since I went off of myeloma medications this past January.
My current state of health allows me to be very active and involved in my growing family. These days, a typical day of mine consists of exercising, gardening, housework, shopping, and looking after babies and toddlers (I am a …
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As humans, we automatically record firsts: our baby’s first steps, our child’s first day of school, our first apartment. In baseball, a fan can tell you where and when a rookie hit his first home run in the majors. We gravitate towards firsts.
Lasts are harder. With a handful of exceptions – the last day of school, the last day of work upon retirement – lasts blur together. When was the last time that baby both crawled and walked before giving up …
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One of the songs by Pearl Jam that I like a lot is "Pendulum," the seventh track on their 2013 album "Lightning Bolt." Here are the song's lyrics:
Can't know what's high, 'til you been down so low. The future's bright, lit up with nowhere to go.
To and fro the pendulum throws.
We are here and then we go, my shadow left me long ago. Understand what we don't know.
This might pass, this might last, this may grow. …
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A team of U.S. researchers has published the results of an investigation into eyelid-related complications in multiple myeloma patients receiving treatment with Velcade or Kyprolis. Drawing on the results of their investigation, the authors of the new study also propose guidelines for the prevention and management of such complications.
The authors report on a case series of 16 patients who developed either blepharitis or chalazia after starting treatment with Velcade (bortezomib) or Kyprolis (carfilzomib).
Blepharitis is the medical term for …
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Recently, my myeloma specialist sent me for a PET/CT scan. I have had many annual skeletal X-ray scans, but since I now have had two cancers (multiple myeloma and breast cancer), and the PET/CT procedure scans more deeply into the bones and tissue than regular x-rays, this seemed like a good idea.
Results of the scan will provide a baseline for my health going forward. If there were any hotspots of fast- growing cancerous tissue cells in my system, …
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Italian researchers have found that common measures of heart and blood vessel health may predict the risk of heart-related side effects in multiple myeloma patients treated with Kyprolis (carfilzomib).
In particular, the researchers found that myeloma patients who experienced heart-related side effects while being treated with Kyprolis had significantly higher blood pressure, left ventricular mass, and pulse wave velocity before starting Kyprolis treatment than patients who did not experience heart-related side effects.
Blood pressure, left ventricular mass, and pulse wave …
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There are times when I wonder how we got here. There was a time before these days when we were newly married. Not even 30 years of age, we were carefree and filled with the optimism born of a newlywed couple. The future was an unwritten book, full of world travels, children playing on vintage harlequin tile floors, and growing old together.
That was nearly 15 years ago. I barely recognize us now. The love remains – and nothing could change it – but …