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Myeloma On The High Plains: Can I Do This?
By: Mark Pajak; Published: September 30, 2020 @ 6:19 pm | Comments Disabled
I cannot help but at least consider the idea that some part of my having cancer was my fault. No, I am not beating myself up. To do so would be terribly cruel and unfair. Life provides us with that in adequate doses as is. I certainly do not need to add on to that. However, in spite of all evidence to the contrary, it has been considered at times in the dark recesses of my small mind.
Before being diagnosed, I did not smoke. I was a moderate drinker, exercised regularly, and limited my intake of sugars and high cholesterol foods. In general, I tried to take the steps I had heard about, read about, and believed in that could help in maintaining or extending life as I knew and desired.
And then, boom, I was diagnosed with multiple myeloma. Cancer! How could that be? I mean, what the heck?
The fact that I had multiple myeloma was not necessarily known to be linked to my lifestyle or workstyle. Multiple myeloma knocked on my door, welcomed itself into my life, and then decided to stay, uninvited.
Hearing I had cancer was a huge punch to the gut. The ensuing radiation and treatment acted as shots to my glass jaw and really woke me up to the fact that I had to in some respect “put up my dukes” and in some manner or fashion and fight back. I had to confront the possibility that I was a punch away from it being “lights out.”
In evaluating the situation, I had to admit to myself that I was not as strong, not as wise, nor as in charge as I once considered myself to be. And the sooner I accepted that reality, the better.
For the first time in a long time in my life, I had to face the reality of knowing without a shadow of a doubt that I needed help, luck, and good fortune. And in recognizing these needs, I also had to come to some understanding as to what I was capable of in terms of satisfying those needs.
In trying to define my capabilities, both mentally and physically, I had to first let go of my ego and its pre-myeloma ideas as to what my life needed to look like. I had to reestablish my capabilities for survival. I needed to change my perspectives on many “things,” such as redefining what “being tough” meant. I had to adopt new parameters for accepting help.
As an example, prior to my myeloma diagnosis, the idea of freely talking about toileting, gastrointestinal functions, bathing, and hair loss to family members and strangers was not possible. After my transplant, it was a whole new ballgame. I freely gave information and was comfortable in discussing such matters of personal hygiene.
I also became more open to sharing thoughts and ideas about how I wanted to manifest kindness and compassion in my life moving forward. I was changing because ... well, I am not sure why, but I knew it was necessary.
As much as I saw changes in my mental and emotional being, I also experienced physical “newness.” What I am capable of after my transplant and now five and a half years later does not look like what I was capable of prior to my diagnosis. However, I am by no means complaining or disappointed. It is what it is.
While my desires are still somewhat defined by my pre-myeloma ego, each day forward carries me further away from that state of mind. Accepting my new reality and trying to find out what I am actually capable of, or not capable of, doing brings new adventures. Oftentimes it’s a relief to find out that something just “ain’t going to happen.” Often, it is accompanied by laughter and a realization that “My, how times have changed.”
Testing my capabilities, or actually my new capabilities, with regards to emotions, activities, thoughts, and concerns is ongoing. It is a moving target.
When I was first diagnosed, I could not walk down the hallway in our house without experiencing tremendous pain. After about a month of treatment, I was capable of walking to the end of the block on our street. The first time I picked up a golf club after my transplant, I was able to go to the putting green and “practice” my putting for about ten minutes before being totally exhausted. Eventually, I got to where I was capable of walking nine holes, and then eighteen holes, of golf. These were huge events. Events that re-defined my capabilities.
And the beat goes on (thank you, Sonny and Cher). About two weeks ago, several friends, my wife, and I walked to the top of Medicine Bow Peak, which is just west of Laramie. It’s about a 3,000-foot hike up to 12,000 feet (3,660 meters). I was the slowpoke keeping up the rear guard. And for the majority of the hike, I was asking myself “Why in heaven’s name am I doing this?”
Well, being able to try, and learning more about my new capabilities, was well worth the effort. Having a new “living with cancer ego,” now that’s the ticket.
Mark Pajak is a multiple myeloma patient and columnist here at The Myeloma Beacon. His column is published once a month.
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