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Living For Lamingtons: Life On Hold
By: Marjorie Smith; Published: April 16, 2020 @ 6:23 pm | Comments Disabled
This column will be different from my previous ones. I’ve been struggling to find the right words.
I can’t pretend: I am frustrated. In fact, I’m very frustrated about the current situation. I imagine I’m not the only one, so I decided to share my thoughts here.
It seems as if, at the moment, normal life is on hold. Every day brings more terrible news about the spread of the latest coronavirus disease, or COVID-19, across the globe. Cases increase and deaths follow. It’s totally grim.
Right now I feel sad for the world, and I feel sad for myself. I feel selfish just saying that, as I don’t have to go out to work in a hospital or a care home. I don’t have to meet this virus first hand. I only have to stay in my home in Scotland and try to stay safe.
People say that we just have to be patient. But I am not patient. People say that we will have a vaccine within 18 months. 18 months! You might as well say 18 years as far as I am concerned.
I want to do things right now. I only have now, because I am in remission. For me, every moment counts. I had a blood test a few weeks ago, and I heard those lovely words: "No M-spike." I rejoiced, as did my husband. Our life can often seem so controlled by the tiny “No” and the fear of it being absent.
But right now there is something else controlling my life: COVID-19.
We were due to leave last week for a fabulous adventure, but like everything else for us and for everybody else, it’s cancelled. I feel cheated, I feel sad, and I feel selfish. I know I am lucky, and I ought to feel grateful, but I don’t! I had all sorts of plans for 2020, and I fear that most will not take place.
I have read others with multiple myeloma talking about all the things they can still do, and I admire their stoicism. What they say is true, and I should be able to share the pleasure and rejoice in the positives.
I also know that I am luckier than most people reading this column. Many of you have to run the gauntlet of the hospital for tests and treatment, and so many of you will have to cope with a multitude of fears and worries made so much worse by this virus.
It certainly is not an understatement to say that I’m finding it hard to be positive at the moment, but I am nevertheless trying. I have always tried to look forward and take the best of things that come my way. I realize that feeling so sad and sorry for myself isn’t a good place to be.
So every day I try to find things to do that remove me from the news and the shocking images from around the world.
My latest activity has been to make mystery seed boxes for local children. I make a little box and put in tiny packages of “mystery” seeds. I enclose everything they need, except water, to set up their mystery experiment and provide detailed instructions. The children and the parents seem delighted, and the activity helps me to drift to a better place.
I would also like to plan some “when it’s over” treats for myself, but I am having difficulty with the seemingly endless predictions of the pandemic. In addition, it seems almost disrespectful to think of a vacation when so many people are struggling.
Perhaps some of you, my readers, have some suggestions or tips for good ways to come to grips with life at this time.
In the meantime, I send my very best wishes to you and I wish you good luck in the weeks ahead.
Marjorie Smith is a multiple myeloma patient and columnist here at The Myeloma Beacon. Her column is published once a month. You can view a list of her columns here [1].
If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .
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