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Northern Lights: How I Am Dealing With COVID‑19 As A Multiple Myeloma Patient
By: Nancy Shamanna; Published: March 14, 2020 @ 4:34 pm | Comments Disabled
Coronavirus disease 2019, or COVID‑19, has been all over the news here in Canada lately as the virus spreads to North America.
Fortunately, so far in Canada, the rate of infected and diagnosed patients is still at a low level. In order to prevent the spread of COVID‑19, however, large gatherings have been cancelled.
The Juno's, Canada's annual music award ceremony, were cancelled this month, and the National Hockey League (NHL) has suspended its season early. Even the Toronto Raptors, a member of the National Basketball Association (NBA), have suspended play along with the rest of their league. Many conferences, schools, and any gatherings of over 250 people have been cancelled.
In addition, people returning to Canada after being in any other country are being asked to "self-isolate" at home to check if they develop symptoms of the coronavirus infection.
Hopefully, these Herculean and drastic measures will help to slow the spread of this virus in our population. In our country, we are worried about a sudden spike in serious illness that could overwhelm our health care system. The buzzword for avoiding this "Flatten the Curve."
What am I doing to protect myself, and thus my family, against this new health threat?
As a myeloma patient under active treatment, I know that my immunity is lower than I would like and that I need to be very cautious.
As a result, I first and foremost resolved to self-isolate as much as possible until this pandemic dies down. This is not as easy as it sounds, since I have been involved with some local organizations for quite a while, and I thoroughly enjoy socializing with the members of the various clubs and groups.
In addition, I have implemented the precautions that are being recommended for everyone: hand washing, and staying a safe distance away from other people. I wear a face mask if out in public. We have stocked up on some staples and frozen food. We also bought fresh food, such as carrots, potatoes, squash, eggs, that keep well, and sundries such as liquid hand soap, toothpaste, and the like. I think we have enough supplies to get through two weeks, and we are told that Canada's supply chain is working well so we don't need to worry about re-stocking when necessary. I also keep current on recent developments from our local health authority.
I realize that travel is not currently recommended for anybody, since it can expose you to the disease. Also, international travel raises the possibility of illness in a foreign country, where one is not as the health care system.
I was particularly disappointed about the no-travel advisory since I just finished up my sixteenth treatment of Darzalex (daratumumab). My first eight treatments were one week apart, and the following eight treatments were two weeks apart. Going forward, my treatments are to be four weeks apart. I thought I could do a bit of travelling in between the treatments. It seems that is not to be happening for a while yet as I continue with my self-isolation. Seeing the spring flowers in bloom on Vancouver Island will just have to wait!
If I were to be diagnosed with COVID‑19 despite all my efforts, I would have to be quarantined for at least 14 days, and so would anyone who had been in contact with me. That would include my husband, my grown daughters and their families, and even my 93-year-old father, who has been in hospital for a while.
As much as possible, however, I want to avoid infection, as people with cancer and/or suppressed immune systems are at the highest risk for infections that become particularly serious. In the worst case, an infection could develop into life threatening condition that could stretch my capacity to fight it.
That said, after thinking about this turn of events, I remembered that I have been down this road before. We were caught up in H1N1 epidemic in 2009 / 2010. That was when I was having my stem cell transplant, and my immunities were very low then. I was frightened to undergo the transplant at that time, but I went ahead with it anyways. Apart from the actual infusion of my stem cells and a two-night stay in the hospital, I was treated as an outpatient. During that time, my dear husband, a stellar caregiver for me and our whole family, cared for and protected me at home, and I didn’t go out much for a few months. So in a way, self-isolation is nothing new to me.
I truly hope that everyone implements the recommended precautions as seriously as I do, and that together we can "Flatten the Curve."
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The quotation for this month is from Margaret Chan (1947 – ), a Chinese-Canadian physician and previous Director-General of the World Health Organization (WHO), who said: "After all, it really is all of humanity that is under threat during a pandemic."
Nancy Shamanna is a multiple myeloma patient and a columnist at The Myeloma Beacon. You can view a list of her columns here [1].
If you are interested in writing a regular column to be published by The Myeloma Beacon, please contact the Beacon team at .
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