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Living For Lamingtons: Learning About Depression In Unexpected Ways
By: Marjorie Smith; Published: September 18, 2019 @ 3:05 pm | Comments Disabled
About four and a half years ago, prior to my multiple myeloma diagnosis, I started to have lots of health issues that were previously unknown to me.
The ones that initially affected me most severely were back and rib pain and breathlessness when I exercised. I had slipped when hill walking, and I thought I might have pulled a muscle or even broken a rib. I couldn’t find any reason for the breathlessness, but I thought I might have damaged an intercostal muscle.
Yet none of this really made much sense. My slip had been minor, and rather than getting better with time, my health problems were intensifying.
So I made an appointment to see my family doctor. During the next few months, I saw this doctor or another within the practice about 12 times. I was given lots and lots of painkillers. Every time I went to the practice, I was given yet another prescription for a stronger drug. It was also suggested to me that I should see a physiotherapist and a chiropractor. I tried both and was in excruciating pain as they manipulated my back and ribs.
This situation continued for months, and the problems got worse and worse.
I can still remember well the particular doctor’s visit when I was told that I was depressed. It certainly was true that I was anxious and worried about my deteriorating body. But depressed? Why would I be depressed?
I hadn’t previously suffered from depression. I didn’t know very much about depression, but I did know that it was a very serious condition and wondered if it could somehow explain my symptoms. I certainly was not my usual happy self. I couldn’t do any of my normal activities, and the constant dreadful pain was wearing me down. Did these symptoms cause depression, or was depression causing these symptoms?
Eventually my health deteriorated further and, because my husband and I had moved to Singapore, I finally was referred to a myeloma specialist. That was the end of any further discussion about depression because I was diagnosed with multiple myeloma. I was obviously very sad about my diagnosis, but I am pretty sure that I wasn’t depressed.
It was a tough diagnosis, and I can appreciate that it could lead someone to experience a sense of hopelessness and possibly depression. Maybe some readers of this column have experienced depression or, like me, a false diagnosis. I would never, ever want to belittle the way other people react to the many grim things that a myeloma diagnosis and subsequent treatment bring.
During the year following my diagnosis, I did come across depression. My dear school friend was going through the most severe, frightening, and terrible bout of depression. Despite me being in a hospital in Singapore and her being in the United Kingdom, we started to share our experiences. I learned about depression. My friend learned about myeloma.
One of the upsides of my treatment with dexamethasone was that I was awake most of the time. Coupled with the time difference between Singapore and the UK and my friend’s chronic insomnia, we were able to chat via email day and night.
It sounds pretty awful but, for both of us, it was a lifeline. We renewed our old friendship in an incredibly meaningful way. Mutual understanding has continued and is so very precious. I found finding out about depression very challenging, and I have great sympathy for those who suffer. It’s such a difficult and sort of unseen struggle.
My friend has become a myeloma specialist of sorts and can follow me through my symptoms and my fears. She is always there for me and still provides 24-hour support (though fortunately we’re both sleeping better now and live in the same time zone). I, too, have some understanding of how she was feeling, and I have had the privilege of following her recovery.
During the time we were chatting regularly, my friend often asked me this question: Why is it that you are the one with multiple myeloma and yet I am the one with depression?
It’s strange to think of it that way. I don’t have an answer. I don’t know why. But I certainly know that I am not immune to depression any more than I am able to avoid relapse. And it seems so unlikely that myeloma and depression would have such a positive outcome for our friendship, but life is full of unexpected turns.
Marjorie Smith is a multiple myeloma patient and columnist here at The Myeloma Beacon. Her column is published once a month. You can view a list of her columns here [1].
If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .
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