Northern Lights: My Real And Imaginary Menagerie
It has been a very cold winter here in Calgary since the end of this January. Having arctic temperatures of below -4 degrees Fahrenheit (-20 degrees Celsius) for many days in a row has been stressful for people and for wildlife. We people can bundle up in our parkas, boots, and down mitts to get outdoors for a walk on a sunny day. We can also drive to a shopping mall to walk around there, or go to the gym for an indoor workout. My husband and I have been doing all of these activities in these arctic temperatures.
The outdoor wildlife, on the other hand, is mostly hard hit by the arctic temperatures. At least there is a lot of snow on the ground, and smaller burrowing animals can shelter underneath it. We see lots of rabbits hopping about, but I haven’t seen any of the deer, bobcats, porcupines, or even many squirrels lately that we saw last autumn. What we have seen is a pack of coyotes that has a den somewhere in the woods behind our street. It is indeed startling to see six of them running along, looking healthy and with fluffy coats! They seem to thrive in winter, but I hope that they disappear back into the woods come spring!
The wildlife seem to simply survive from one season to the next, but we people have the capability of thinking a lot about our lives. What happens psychologically when a cancer patient goes through a period of panic and the need to fight hard for survival, and then gets into a phase of being well again? In the case of multiple myeloma, one can never be 100 percent sure that this disease will not attack us again, since it is considered to be ‘treatable but not curable.’ All of us in the myeloma community are hoping that eventually a remission will be just that, and a relapse will not be just around the next corner.
You would think that after a period of ten years, one shouldn’t have to worry about fighting hard against myeloma again. However, in my case, I am still being monitored regularly and may well have to start treatment again. I had actually stopped my treatments in January, three cycles after starting treatment again, since at that time I had a low level of disease and the side effects of my Revlimid (lenalidomide) and dexamethasone treatment were somewhat difficult for me to manage. So now I am left wondering how long it will take for me to relapse again and start treatment. At least there are more treatments available now than there were a decade ago!
I am mostly living an everyday life that involves time with my family (I am a grandmother of four young boys now), my work with my husband, and my hobbies. My hobbies include singing, reading, and making crafts. I also try to stay fit by walking and going to a gym.
Despite my somewhat carefree life at the moment, two imaginary animals have been accompanying me on my myeloma journey: the "elephant in the room" and the "invisible gorilla."
An "elephant in the room" refers to a significant problem that no one wants to discuss. It is a form of thought repression. Ten years ago, I had a difficult time to not speak of my myeloma. It was so new to me, plus I was in a lot of pain from vertebral fractures and also suffering from an overload of cancerous plasma cells. My family and friends gathered round to encourage me and to help me through this crisis. Gradually I realized that I could not talk about multiple myeloma all of the time, and we talked of other matters too. The myeloma was still there in my mind at least, but was relegated to being an elephant in the room. Then as the years went on, I met other people through my social groups; most of them did not know of my health history. I talked less and less about the myeloma, and since I usually felt quite well too, did not need to. Meanwhile, I had a secondary cancer, and after a while of talking about that, I think it became a second elephant.
Last fall, I went to a talk about psychology and saw a video clip called the ‘Invisible Gorilla,’ created by two psychologists, Christopher Chabris and Daniel Simons. In the video clip, two teams of basketball players, dressed in white and black t-shirts, were passing balls back and forth. The challenge was to count how many times the ball was passed by one of the teams. What was a surprise in the video was that a woman dressed up in a gorilla suit strolled through the whole scene. It turned out that at least 40 percent of the viewing audience (including me) did not notice the gorilla. These people were so focused on the ball game that a really large intrusion did not register with their brain. The "Invisible Gorilla" is now also a metaphor for being so caught up in something that one does not notice something really glaringly obvious and possibly very important.
In our lives, there are so many important things to attend to, and any of us could miss something that turns out to be very important later, such as a sign of an oncoming disease. It happened to me in 2009 when I had a lot of back pain for months before I had vertebral fractures, which led up to my multiple myeloma diagnosis.
Now I am aware of the myeloma, as are my doctors, and it is well monitored. So it is not an "invisible gorilla" to me any more, although others might be surprised to learn that my remission may well be only temporary.
So, in between studying nature in the winter, and thinking about metaphorical animals, I have a real menagerie! I think I will take a trip to the zoo in the near future and visit the gorillas and other interesting animals. Unfortunately, the elephants at the Calgary Zoo were moved to another zoo a few years ago.
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The quotation for this month is from Lyall Watson (1939-2008), a South African botanist, zoologist, and biologist, who said: "If elephants didn’t exist, you couldn’t invent one. They belong to a small group of living things so unlikely they challenge credulity and common sense."
Nancy Shamanna is a multiple myeloma patient and a columnist at The Myeloma Beacon. You can view a list of her columns here.
If you are interested in writing a regular column to be published by The Myeloma Beacon, please contact the Beacon team at .
Related Articles:
- Northern Lights: Managing Fear
- Northern Lights: A Different Spring
- Northern Lights: How My Husband Helps Me Deal With My Multiple Myeloma
- Northern Lights: My History With Myeloma And How Things Have Changed Since My Diagnosis
- Northern Lights: An Update On My Treatment With Darzalex, Revlimid, And Dexamethasone
Great thought provoking article Nancy. I had heard about the “Invisible Gorilla” experiment before, but not in connection with our lives before myeloma. You are absolutely right! In retrospect, there were lots of signs and symptoms of my husband’s condition, and we found excuses for every one of them until one day I said “Enough is enough!” and I took my husband to our local ER.
I share your concern about the wildlife and the exteme cold even though I know they have coped and evolved for eons. While we live in the mountains of New Mexico, it doesn’t compare to the cold you experience in Calgary.
Like you we find that we discuss my husband’s myeloma less and less. We can tell when it makes people uncomfortable. For many it is just too complex a condition to discuss. It is not like saying “I have prostrate cancer or I have breast cancer,” which are more common. One of our relatives doesn’t understand why we go so far out of state for care and treatment even though I have explained that there are no myeloma specialists in our state. Yes, at times the discussion of myeloma is the elephant in the room. Thank you for your column and please continue to share your thoughts with us.
Thanks Patty, I am glad you could relate to my column. We had a terrible cold snap that actually made our winter have a daily temperature 6 degrees Celsius below normal! All is better now, though; the ice and snow are melting away, and I have seen magpies taking sticks to build nests and robins singing. There was even a sighting of river otters near us on the ice floes of the river. Dilip and I were able to get out for longer walks recently; spring has sprung!
I think it is when I am in an environment such as a monochromatic snowy landscape with extreme cold that my imagination takes hold more. This wintry weather caused me to think about my metaphorical friends in the animal world.
I hope that you and your husband are doing well, and I can understand why you travel a long distance to get the best available medical advice.
Dear Nancy, I found your column very interesting and it made me think about the way in which we, and other animals, adapt to our circumstances! I hope that you can stay free from treatment for a while longer and that you enjoy the Canadian springtime when it eventually arrives. Best wishes and thanks.
Thanks for your good wishes, Marjorie! I guess that adaptation is key for all of us, including the wildlife. I am trying to get very caught up around here, in terms of home organization and also staying healthy and fit! I am worried about another relapse, and this time it could be a battle! I am being closely monitored and am in good hands medically. Every decade seems to bring new treatments and ways of contemplating potential cures. I am happy that monoclonal antibody treatment is now available to me too.
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