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A Northwest Lens On Myeloma: Time Marches On

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Published: Aug 16, 2018 5:30 pm

“How did it get so late so soon? It's night before it's afternoon. December is here before it's June. My goodness how the time has flewn. How did it get so late so soon?” - Dr. Seuss

Two years. Where has the time gone?

I just celebrated the second anniversary of my au­tol­o­gous stem cell trans­plant. At times, it seems like only yesterday. At other times, I can hardly remember it and have to wonder if it happened at all.

It is human nature to mark the anniversary of events, big and small. It provides us an opportunity to reflect on where we are and where we’ve been. We get to take stock of our accomplishments over time.

Many times, as is the case of the anniversary of my trans­plant, we get to reflect on an event that shaped our lives and the highlights of the year that passed.

Naturally, the first thing I review when I take stock of the past year is my health and where I stand as a multiple myeloma patient.

Immediately fol­low­ing my trans­plant, my M-spike was a tiny fraction of where it started, and for the last 12 months, there has been no detectable mono­clonal protein in my blood samples. I remain in a full and com­plete response, and I'm generally very healthy. By all measures, I'm in better health today than I was a year ago.

As a "high-risk" myeloma patient, I feel great reaching 24 months post-transplant in such great con­di­tion. Each day, each month, that I remain healthy feels like a great accomplishment.

Of course, the real value in keeping my good health is having the opportunity to ex­peri­ence the joy of my family.

My wife and I celebrated our 36th wedding anniversary at our favorite fancy restaurant. The next day, we attended an explosive live Pearl Jam "Home Show" in Seattle with one of our sons and his girl­friend. We remain young at heart but enjoy our occasional senior-citizen discounts.

My eldest son welcomed his third child, my third grandchild, into the world this year. She is the sweetest, most adorable girl (since her elder sister, of course). I can’t imagine missing her smile and snuggles as I try to coax her to sleep.

Before my first grandchild arrived, which was also pre-diagnosis, I wasn’t sure I was ready (or old enough) to be a grand­parent. Today seeing them grow gives me my greatest joy.

My daughter com­pleted her masters' studies and was awarded her degree in December. She is also a fantastic roommate. She's gone through the trials, tribulations, and excitement of remodeling and improving our new shared home. She is raising goats, and she adopted a couple barn cats to keep the mice population in check. It's been an amazingly fun year in our new home.

The city of Bellingham promoted son number three to a position rewarding his hard work. He has also committed his services to his fellow employees as a union steward during a tough negotiation year.

Salmon are a critical resource in the Pacific Northwest, especially for the native tribes of Puget Sound and the coastal waters. Son number two, a salmon biologist, led a local tribe’s efforts to preserve and enhance salmon runs in their traditional waters.

Obviously, I'm proud of my children and their accomplishments. I adore my three precious grand­children. I know I share this trait with all parents and grand­parents. For me, it highlights the great value of being given another year of successful treat­ments.

As children, we couldn't wait for the next event. Be it a birthday, Christmas, or summer vacation, the next exciting event was always in the future.

The special events might change as we get older, or as our health changes, but we don’t ever shed our anticipation of future events.

When I was a child, the time before an anticipated event seemed to crawl. I thought Christmas, or my birthday, would never arrive.

As an adult, this is no longer true, and as a myeloma patient, I view this with a new perspective.

I’m certainly excited about reaching this second birthday active and healthy, but I’m shocked at how quickly it arrived. The cynical gremlin in the back of my head reminds me that not only do the happy future events come and go quickly, so will the less pleasant events. That is the double-edged sword of time I suppose.

Of course, this dilemma is true for all humans. We anxiously await the next big thing, ignoring how the passage of time is bringing us closer to a grand finale.

As cancer patients, we certainly may be more aware of this, but that could be a blessing too. If we're lucky, we gain a greater appreciation of all the good in our lives. Knowing our time may be limited, we seek opportunities to enjoy that time.

I know in the past I might have said no to getting up and doing something that seemed less enjoyable than what I was doing but gave me a chance to share time with family or friends. While I still don't always say yes, knowing the finite chances ahead to do these things gives me a new measure to make my decision.

I eagerly await my third birthday next July. I will, as I’ve done today, reflect on the many joys that take place in the next 12 months. It is now my responsibility to fill that time with as many happy memories as possible.

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Mark's Photo For The Month

I spent my second birthday back at the Twin Lakes and had a first-of-its-kind opportunity to watch five or six juvenile bald eagles share a feast of fish at lakeside. Here is a photo of one of the eagles leaving his perch in the tree to go down to the buffet.

Eagle flying from its perch in an evergreen tree

Photo copyright © 2018 Mark Pouley.

Mark Pouley is a multiple myeloma patient and columnist here at The Myeloma Beacon. His column is pub­lished once a month. You can view a list of his columns here.

If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .

Photo of Mark Pouley, monthly columnist at The Myeloma Beacon.
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4 Comments »

  • Patty Nolan Bodin said:

    Congratulations Mark! We know how overjoyed you and your family must feel at this point in your multiple myeloma journey. To be in complete response after two years following your stem cell transplant is wonderful. We also certainly know how you feel about sharing the joys of being a grandparent. We never thought that day would come for us, and now we have a 14-month-old baby girl. It is even more rewarding that my husband is here to enjoy her too. He had his stem cell transplant almost three years ago this month and like you has no detectable monoclonal protein. While all parents love their children and take pride in their accomplishments, sharing life experiences with them while you battle a chronic condition makes each moment all that more precious.

    Your photo of the bald eagle is fantastic and is a poignant illustration of how beautiful nature can be.

  • Nancy Shamanna said:

    Thanks for the heart warming column, Mark! I am glad that everything is going well, both with your health and your family too. Wishing you many more years of good health, and like Patty does, I think that is a great photo of the eagle. We get bald eagles here in the Bow River valley sometimes, but I see a lot more of them on the coastal areas of Vancouver Island!

  • Sylvia Benice said:

    What a joyful column! Thanks for writing about the possibilities in life and doing what we can and appreciating the good all around us, no matter the circumstances we find ourselves in.
    The photo of the eagle is wonderful. You caught very well the dynamics in nature.
    Best to you on your second anniversary!

  • Susan Mandel said:

    Happy Birthday! And thanks so much for sharing your thoughts, as well as your fantastic photography. What a shot of that eagle!