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Living For Lamingtons: Myeloma Days
By: Marjorie Smith; Published: May 31, 2017 @ 3:16 pm | Comments Disabled
I find that some days, while I don't exactly forget about multiple myeloma, I can focus on other aspects of life and feel a bit myeloma-free.
Yesterday was not one of those days.
My husband Graham and I have recently moved back home to Scotland from Singapore, where we had been living for the past two years. As I've mentioned in previous columns, so far all my myeloma treatment has been under the care of a great team in Singapore. Without wishing to sound overly dramatic, this team brought me back from the brink. I felt incredibly secure about all aspects of my treatment and had developed close relationships with many of the staff. Leaving was tough. I had an emotional farewell at the clinic and was very touched to receive gifts and letters wishing me good luck.
Returning to Scotland, trying to fit into the health service, and finding a doctor with an interest in multiple myeloma was going to be rather daunting. However, with the help of a friend, I found such a doctor.
Yesterday I had the first visit to a new clinic. I was extremely apprehensive about the appointment and felt a bit of a gibbering wreck!
Walking into the hospital seemed so strange and unfamiliar and really quite frightening. We found the hematology area, and I saw the treatment rooms where treatment infusions take place. Suddenly the surrounding became more familiar, with the same safety signs and medical information leaflets on the walls. I might have crossed continents, but with a glance into the treatment area, I could immediately empathize with the unfortunate patients who were undergoing some type of infusion!
I then met the myeloma specialist, and the process began. Obviously, I had to explain all about my diagnosis and treatment so far. We talked for over an hour about the symptoms, diagnosis, induction treatment, stem cell transplant, recovery, and maintenance therapy. There were blood tests, examinations, drug reviews, revised treatment plans, and many, many questions.
I was slightly hazy with details a few times, but luckily my husband could fill in the spaces.
The doctor couldn't have been nicer, nor could the nurse who took my blood pressure, which predictably had gone from its normal 110/70 to 155/92!
I felt my illness through and through. I was every inch a multiple myeloma patient. There was no escape, no chat about the other parts of Marjorie, no relief from the reality of this cancer.
We left the hospital and drove back home, still deeply in myeloma world. We had phone calls from family who had been concerned about the appointment. Everyone was reassured that the appointment had gone well and that I would be looked after well.
I struggled to work out why I felt so grim despite the day having really gone so well. I felt fortunate to have found another great doctor and a clinic where I will be well cared for. However, I also felt very deeply sad inside. I think it was because I had to face up to this disease again, I had to tell my story, and I had to listen to the doctor discuss the likely relapse.
I had to endure a real myeloma day.
I believe at some level I had felt that, as I left Singapore, I had left multiple myeloma behind. Back in Scotland I feel more 'normal,' and yet I brought my myeloma with me. She will be my life companion, and I would rather she had stayed in Singapore!
Marjorie Smith is a multiple myeloma patient and columnist here at The Myeloma Beacon. Her column is published once a month. You can view a list of her columns here [1].
If you are interested in writing a regular column for The Myeloma Beacon, please contact the Beacon team at .
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