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Letters From Cancerland: Big Books
By: April Nelson; Published: April 20, 2016 @ 4:51 am | Comments Disabled
The infusion regimen I follow for Kyprolis [1] (carfilzomib) is two consecutive days a week, three consecutive weeks in a round, rest one week, repeat. Each session lasts two hours, more or less, so in any complete round of treatment I spend 12 or more hours of enforced downtime, sitting in a chair while chemicals drip into my body.
What to do, what to do?
I don’t carry a tablet. I don’t have a smart phone, just a way retro flip phone from which I text only. I don’t knit, crochet, cross stitch, or quilt. In short, there are no handcrafts to while away the hours.
Oh, and I don’t watch television in any form.
But I do read. Voraciously and quickly. I read books, not e-readers in any form. I know: e-readers are so much more convenient, portable, blah blah blah. I don’t care for the format. I am hopelessly wedded to tangible books I can hold in my hand.
So I started out the Kyprolis adventure schlepping books to and from the clinic. The issue that I kept running into was coming up with enough books to last me two hours, then coming up with enough material the next day to cover another two hours.
I got tired of carrying multiple books in my bag. I got tired of sorting through my library books and trying to estimate how long a book would last. Was I close to the end and had to bring a second book?
After three rounds, the answer was stunningly obvious. Read Big Books.
You know what a Big Book is. A Big Book is one of those mighty tomes that somewhere along the line someone, maybe yourself in a younger incarnation, said you must read to be well-rounded. The Decline and Fall of the Roman Empire. War and Peace. Ulysses (James Joyce) followed by The Odyssey (Homer). The complete works of William Shakespeare, including his sonnets. The Tale of Genji. The Magic Mountain.
Those kind of books.
For my first Big Book, I chose War and Peace for the sole reason that I had bought a paperback edition of it in high school and never read it. My original copy is long gone, although for the decades I owned it, it crisscrossed the United States as I moved around and had several thousand miles under its belt. I never read it during those years, mind you. I just thought about reading it. Even in tiny print (I think it was printed in 6 point type), it was a hefty book. The paperback I bought this time around was in 10 point, I believe, but still a hefty book.
Isn’t that the whole point of a Big Book? To be hefty?
War and Peace took approximately five rounds of Kyprolis to read. (My one rule of chemo reading is that I not read the Big Book outside of my infusion time.) I managed to end it right at the end of Round 8, timing I could not have planned if I tried.
So what did I think of War and Peace forty-plus years after I first meant to read it?
It wasn’t a waste of time. (Trust me, I would have abandoned it if I felt that way. I may be geeky with my Big Book reads, but I’m not stupid.) I now know that Pierre and Natasha end up happily married, which made me glad for them both. And I know a lot more about what Tolstoy thought of Napoleon and his ill-fated invasion of Russia than I ever really needed to know.
I saw a cartoon, “Abridged Editions,” about a week after finishing War and Peace, which summed it up in two sentences. “Everyone is sad. It snows a lot.” That’s not a bad summary, Natasha and Pierre excepted.
The next choice, which I started on Day 1 of Round 9, my current round, was easy. Moby-Dick, the Great American Novel. I last read Moby-Dick in freshman humanities at college. In short, also a long time ago. At age 18, I read it as a young adult. I strongly suspect that at age 60, I will read it from an entirely different perspective. Fifteen chapters into it already, this has proven true. Among other things, I am a more patient reader (albeit still fast) than I was at 18.
A close friend who is currently reading and listening to Moby-Dick lent me The Whale, a nonfiction work on whales, whaling, Moby-Dick, Melville, and the wonders of the oceans. My friend meant it as sort of a prelude to my beginning Moby-Dick. After finishing that book, I want to go whale watching. By the time I finish Moby-Dick, I will probably want to go whaling.
Call me Ishmael.
April Nelson is a multiple myeloma patient and columnist at The Myeloma Beacon. You can view a list of her previously published columns here [2].
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[1] Kyprolis: https://myelomabeacon.org/tag/kyprolis/
[2] here: https://myelomabeacon.org/author/april-nelson/
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