Sean’s Burgundy Thread: See Sean Run. Run, Sean, Run.

I couldn’t quite put my finger on what was bothering me.
I was packed together like sardines with hundreds of other anxious runners near the starting line of a big deal marathon.
Photographers were busy capturing images that they would, in turn, share with the world.
Maybe my angst was just pre-race jitters.
Crowds lined the streets and kids held up hand-made signs to encourage their favorites onward.
Anticipating the sharp report of the starter’s pistol, the athletes steeled themselves for the 26-mile and 385-yard run.
I looked at my wristwatch to set the timer. Uh-oh. I didn’t have my watch. Maybe that’s what was ticking me off. And then it hit me.
Forget the watch! What the heck am I doing here? I don’t run. I hate running! No wonder I was out of sorts.
When I was young, my baseball coach humorously observed that I possessed three distinct running speeds: snail, turtle, and sloth.
He was right. I was accelerationally challenged.
So why on earth was I running a marathon? This wasn’t some jog around the park. Serious business was afoot, and I was confident that I was about to make a complete fool of myself.
Furthermore, I had multiple myeloma for crying out loud! I was anemic and weak. My bones were a mess. I just knew that I was going to fall down and get trampled. Someone please stop this insanity!
Even more bizarre, I was attached to an IV pole.
And, in plain view of a gazillion people, I was wrapped in a drafty hospital gown. Across the front of it was my runner’s number: 10. Except this 10 was like the 10 from one of those ‘from 1 to 10, how bad is your pain?’ charts.
My number 10 was freaking out and crying for its mommy.
Then I glanced down and noticed that my laces were untied. If that wasn’t bad enough, I was wearing shiny black patent leather wingtip dress shoes, brand new and not broken in.
Sheesh! How or why was I going to run in untied shiny black patent leather wingtip dress shoes? Oh, and I was sporting mismatched green and red argyle socks.
I was not only uncomfortable, I was also unfashionable.
As I was bending down to address the shoe situation, out of the corner of my eye I saw the race official raise his arm to shoot the starter’s pistol.
‘Wait! I want out!’ I shouted.
BANG!
Too late. As the shot rang out, I yelled and jumped up in a panic. My heart was beating a mile a minute, and I was panting like I had already run the race. My eyes opened wildly.
To my great relief, I found myself safe and sound in my bed at home. It was just a dream. You probably guessed that.
There was no IV pole. No argyles, wingtips, or cheeky hospital gowns in sight.
I was glad that my wife was not awakened by my outburst. I’m not sure that she would have lent me a sympathetic ear at three o’clock in the morning.
I’ve shared some of my weirdly vivid, myeloma-laced dreams with you before. This was a good one.
Someone once suggested that I go see an analyst or a psychologist about my dreams.
I have visited with oncologists, phlebotomists, internists, orthopedists, dentists, nutritionists, interventional radiologists, endocrinologists, nephrologists, hematologists, pathologists, anesthesiologists, and ophthalmologists.
I’ve even spent time with some fellow Methodists.
Frankly, I was about ist-ed out. They all certainly deserved a break from me. I decided to figure out the origin of my marathon adventure on my own.
Well, I was deep into my second round of consolidation chemotherapy, and wacky dreams were a nightly occurrence. Chemo was probably part of the answer.
My dream happened way before the sad events at the Boston Marathon, so that wasn’t it.
Maybe it was triggered by my friend, a skin cancer survivor who constantly harangued me to run with him. Running is a true passion of his. Not breaking any more bones is a true passion of mine.
Or it is possible, as Ebenezer Scrooge described, that ‘a bit of undigested beef’ from a questionable take-out barbeque joint did a real number on my slumber.
But what I really suspect invaded my dreamland was that four unrelated people, just days before that fateful night, admonished me to remember that:
Living with myeloma is a marathon, not a sprint.
I understood what they meant. Pace myself through the treatment. Results don’t happen overnight. Be patient through the trials and tribulations of battling such a difficult disease.
Really, I got it.
But unable to fall back to sleep after my near-miss marathon, I started to think about that adage.
You know, most people enter a marathon on purpose. I haven’t met anyone who had myeloma on their to-do or bucket lists.
In marathons, I suspect that you rarely run two steps forward and one step back. With myeloma that happens more often than we’d like.
Marathon courses are clearly set, marked, and measured for you. Myeloma courses – not so predictable.
When you run a marathon, you want the finish line to get closer and closer. With myeloma, absent a cure, you want to postpone the end of the race indefinitely.
In a marathon, you think about running toward something. With myeloma, you find yourself running away from something. Not only that, you feel like you’re being chased.
Before a marathon, you practice diligently to perfect your arm swing, your stride, your posture, and your breathing. After all, practice makes perfect.
Ain’t no practicing ahead of time before the start of myeloma. It’s hit the ground and run with it.
Myeloma sure takes us to some interesting places, real and imagined. I envy my myeloma buddies who can burn up the tracks. I’m cheering you on. But I think that this turtle will stick to walking!
Sean Murray is a multiple myeloma patient and columnist at The Myeloma Beacon. You can view a list of his columns here.
If you are interested in writing a regular column to be published by The Myeloma Beacon, please contact the Beacon team at .
Love your posts. This one especially!
Right on!!! Great insights! No need for the psychologIST!
You have it down 100%.
I am glad to see that others have strange dreams also. Thanks for the laughs. Some day I will tell you some of mine
Love this! I was diagnosed 6 weeks ago after several years of hip pain from arthritis being anaemic (with another cause) and decided to do a 10 k walk as part of a marathon weekend with a friend. My hip pain had increased due to training and I was so tired after biking home from work. I would crash for a sleep and realise now it was happening most days. I'm a nurse and felt I should have known something was wrong, but was horrified after a routine xray when my doc told me I had multiple myeloma. Felt sorry for doc ... he was pretty upset!
I started chemo within a week of diagnosis and am now off work until December (at least). Not allowed to do anything that may increase risk of path fracture! Hoping for a stem cell transplant for my 50th birthday pressie!
Another great read! Loved it!
You're also one of the ISTs -- a great humorist!
My dream had you finishing first. Too bad about being disqualified for running with an IV pole.
Great column. Thanks!
JP
Thanks for sharing this! I could really relate to the "two steps forward, one step back" at this time since we have been in high gear preparing for my husband's BMT that was set for May 28, only to find out there are now too many plasma cells in his marrow to move forward.
Sean,
Powerful column, terrific metaphor. Enjoyed it a lot. Makes me want to get out my wing tips. Oh wait, I haven't been able to get those on since 2005. Can't give them away though. Hope springs eternal.
I've gotten really tired of people saying "well, I could get hit by a bus tomorrow, one never knows." I always want to answer "yeah, but I can actually see the bus coming you dimwit. Can't you think of something else to say to cheer me up?"
A few days ago I saw the bus in my dreams and it was pretty close. What's worse, the sign on the front said "Out of Service."
Michael
Jenny A : Thank you! Thank you!
Bev: Thank you, too!
Eric: I’ve always had dreams, some recurring from childhood that I’ve had hundreds of times. The post cancer ones have been doozies. I hope that your dreams are pleasant.
Jenny H: Wishing you the very best as you move forward. I’ve known medical professionals who have myeloma and it sneaked up on each one of them, too. I hope that you have a successful 50th birthday transplant – and some celebratory cake!
Sandra: Thank you very much!
Holt: As always, great to hear from you. Keep swinging for the fences!
John: Thanks for the kind thoughts and the scenario that I might’ve won the race. Sometimes just running in the right direction is enough. You’d think that they’d give us a head start if we have to push a pole.
Mia: Thanks for your note. I hope that you have received good news and that your husband has been able to proceed forward. All the best to you both.
Michael: My wingtips are still gathering dust, too. Someone else can throw them away when it’s time. I pray that those buses (real and otherwise) keep their distance. Be well!
Keep running (or walking, jogging, skipping, tumbling, rolling) forward friends!
What an awesome column Sean! I laughed out loud as your detailed dream reminded me of the panic-inducing "teaching nightmares" I used to have, where I showed up for the first day of class to see 100 students shouting at me in my pajamas.
Being a fellow dreamer (and Methodist), I truly appreciate your humorous and encouraging perspectives each month.
Best of luck with your treatment!
Keep strong and keep "running" (sloth-like pace or not)!
Tabitha
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