My last column, A Call to Action ^[1], generated more feedback than the previous three. Clearly, I struck some nerves.

It was great to get more information on the work of the Leukemia & Lymphoma Society (LLS) and its efforts toward eradicating blood cancers.  I deeply appreciate all the LLS does and in no way meant to disparage the organization. Rather, I’m envious of the LLS’ visibility and want to achieve the same for the Multiple Myeloma Research Foundation (MMRF) and other entities focused on the cancer that has struck my family.  This is personal!

In reviewing remarks from several readers, one possible call to action for those who share my concerns would be to reach out to the LLS and advocate for inclusion of multiple myeloma in its literature and appeals.  Based on my experiences, it would likely result in increased donations for the LLS programs.

Alicia O’Neill, who heads up the MMRF Endurance Events Program, wrote me to provide some additional information about the program. She wrote that this year, just four years after their program started, 550 people will be participating in marathons, half marathons, triathlons, cycling events, and other “great races” that will raise $1.7 million, 90 percent of which goes directly to multiple myeloma research.

So, as promised, I have visited the MMRF Power Team website, and I am now registered for the Bank of America Chicago Marathon on October 9.  This will be my first marathon.  After completing 14 half marathons, many friends have asked when I would do a full marathon.  My response up until recently was, “I may never do a full.”  Now we know that will not be the case.  More on this topic in a later column, for sure.

Several other readers shared event-based information, which can be found in the comments ^[2] section following my last article.  I’ll also use the Beacon’s multiple myeloma forums ^[3] to call attention to these wonderful events and other efforts.  Thanks to all who wrote.

Another activity I have begun is reaching out to companies sponsoring the Susan G. Komen Foundation, as I come across them.  I’ve emailed ProFlowers and asked them to consider a special burgundy bouquet for Multiple Myeloma Awareness Month in September.   I’ve done something similar to Planet Smoothie.  No responses yet, but it cannot hurt to ask and my list of companies grows almost daily.

If others wish to do this, please let me know of companies you contact so I may add my voice to your efforts.  Together, I am confident we can effect change in myeloma awareness.

There were other responses that I received after my last column that have sparked ideas for future columns, so I look forward to sharing more with you in the near future.

For any readers interested in how Deana is doing, she has started posting to her CaringBridge site ^[4].  The last two journal entries have brought me to tears, so I welcome any thoughts and/or advice from patients and caregivers who have the time to read and react.

Until next time, Beat The H*ll Outta Multiple Myeloma!