My mom is currently in the hospital for pain. She has been in for 3 weeks now. She originally went in for a blood transfusion. Her numbers were low. Then they did 10 rounds of radiation on her spine because of the lesion there. It was causing leg pain also. Now we are trying to get her pain under control with pain management. Nothing is working. She cries all the time.
She was diagnosed 2005.
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Re: Spinal lesion causing severe pain
Is there any talk by the doctors of removing the lesion via surgery?
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: Spinal lesion causing severe pain
No, she has just been getting radiation. She's on Oxycontin (oxycodone) 4 times a day with Dilaudid (hydromorphone) PRN. She's also suffering from nerve pain in the legs and left hip. And this is going on with a person with no pain threshold.
I tried to get her to get on this forum to learn more information, but she won't.
I tried to get her to get on this forum to learn more information, but she won't.
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Missmed13
Re: Spinal lesion causing severe pain
What type of hospital is she receiving her treatment in?
- Local community hospital with some cancer care ?
- Teaching hospital with neurosurgery capabilities and a regional cancer centre?
- Local community hospital with some cancer care ?
- Teaching hospital with neurosurgery capabilities and a regional cancer centre?
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: Spinal lesion causing severe pain
Mismed13,
You might want to ask if your mom's hospital has any palliative care specialists and/or if they can consult with one. These specialists may be able to offer up a different pain management regimem. By the way, if you are like most folks, don't necessarily equate palliative care with hospice care. Palliative care is used with patients actively combating disease and those in hospice.
Fentanyl patches are often prescribed for multiple myeloma patients who are suffering pain, but I have no idea if fentanyl would provide any relief if oxy and Dilaudid aren't doing the trick. Lyrica is also used to help combat nerve pain, so that might be worth discussing with the doctor.
But I'm not speaking from any personal experience beyond some simple surgery recoveries and a tooth extraction that involved oxy, so others with personal multiple myeloma pain management histories may want to chime in.
You might want to ask if your mom's hospital has any palliative care specialists and/or if they can consult with one. These specialists may be able to offer up a different pain management regimem. By the way, if you are like most folks, don't necessarily equate palliative care with hospice care. Palliative care is used with patients actively combating disease and those in hospice.
Fentanyl patches are often prescribed for multiple myeloma patients who are suffering pain, but I have no idea if fentanyl would provide any relief if oxy and Dilaudid aren't doing the trick. Lyrica is also used to help combat nerve pain, so that might be worth discussing with the doctor.
But I'm not speaking from any personal experience beyond some simple surgery recoveries and a tooth extraction that involved oxy, so others with personal multiple myeloma pain management histories may want to chime in.
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Multibilly - Name: Multibilly
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Smoldering, Nov, 2012
Re: Spinal lesion causing severe pain
No, it's just a local hospital which all her doctors are affiliated with. They visit her every day so they are all on the same page.
The fentanyl patch they had to take off because even the lowest dose was too much for her (stated her pain specialist). They are now considering giving her the pump until they can figure out how to give her the oral meds. I noticed and my mother said they have not been giving her the orals the same way. So nurses 1 way and a different shift another way. The directions were confusing on the Dilaudid. This is why I think she was having breakthrough pain.
We are trying a new way today. Test it for a couple of days and if it works, she can go home. I'll keep you guys posted. I thank you so much for you responses and information. It does truly help.
The fentanyl patch they had to take off because even the lowest dose was too much for her (stated her pain specialist). They are now considering giving her the pump until they can figure out how to give her the oral meds. I noticed and my mother said they have not been giving her the orals the same way. So nurses 1 way and a different shift another way. The directions were confusing on the Dilaudid. This is why I think she was having breakthrough pain.
We are trying a new way today. Test it for a couple of days and if it works, she can go home. I'll keep you guys posted. I thank you so much for you responses and information. It does truly help.
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Missmed13
Re: Spinal lesion causing severe pain
What is the closest trauma centre to you? I don't think it would be a bad idea for a spine surgeon (neurosurgeon or otho. surgeon with spine fellowship) to at least look at your mom's x-rays, MRI etc., if this has not already been done.
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
7 posts
• Page 1 of 1