[heatherlib]

Velcade & Revlimid maintenance therapy - side effects?

by heatherlib on Thu Oct 15, 2015 2:03 pm

I am just finishing up my consolidation treatment – 2 cycles of 2 weeks on, one week off Revlimid, Velcade, and dex (RVD) – after my June 2015 stem cell transplant (SCT) and I am now looking ahead to maintenance, which I believe is going to be every other week Velcade and also Revlimid (unsure of dosing). I'll know more after my visit with my specialist at Dana Farber on the 29th.

I find myself now wondering / worrying about side effects from the maintenance therapy. I pre­viously tolerated the RVD pretty well. But with these last two cycles I've found that the neurop­athy in my feet has worsened and I've had some trouble with my ANC and WBC and have had to step off the dose of Revlimid.

So what should I expect? What have others experienced?

Thanks as always for your input and advice.

[Tom74]

Re: Velcade & Revlimid maintenance therapy - side effects?

by Tom74 on Mon Oct 26, 2015 4:21 pm

Finished my first 6 weeks of treatment. As most patients, the steroids make sleep difficult, you feel nervous, agitated, and you eat too much. Revlimid gives me a cough, dry mouth , swelling of feet, legs, no energy, and a listless feeling. Very nervous stomach, but the worst is a very nasty rash.

I get Velcade shot on Thursdays and as of yet, no side effects.

Good luck with your treatments and this forum is a great place to talk to other people who are going thru the same treatments and have good information.

Tom74

[Tom74]

Re: Velcade & Revlimid maintenance therapy - side effects?

by Tom74 on Tue Oct 27, 2015 5:59 pm

Another side effect ... shingles. Doctor caught it early today and started pills with cream. Staying optimistic, but at times seems it is a kill or cure due to side effects.

Tom74