[LaNchee]

Rash, maybe from Velcade :/

by LaNchee on Thu Jul 28, 2011 10:55 am

Hello,
 I hope somebody of you could give me an advice. I have a problems with english so I hope you'll understand me. I think that maybe in other countrys doctors and patients are more inform about that rare disease, and the side effects of treatment. 

My granny was diagnosed multiple myeloma in april 2011. I don't know the type of multiple myeloma but i know that she has a little bit high Kappa light chains. Her value of Kappa is 4,08 and it has to be 3,8. She doesnt have M component, and has a kidney damage.
She started with Velcade (two weeks therapy, one week off), but after a few injections she got a rash. Doktors take her on alergic testing and the test shows no reaction on Velcade. Than they gave her with Velcade dexametasone (on a day she get a Velcade and the day after). She continued normally, and after a 3-th injection in her 3-th cicle she got a rash again. Doktors gave her a pills for that allergy, one pill a day. 
Doktors really don't know what is going on, they think that the rash is comming from Velcade. But the question is why she gets a rash only sometimes. If she's alergic she will react every time they gave her a Velcade. First time that rash really itching her, but now she have no problems (no itching, no pain) only that rash on her upper body. We know that she's having a good medical care, and have a really great drugs but we're afraid if she have to stop with Velcade.
Does anyone have problem like she does? 
Greetings

[liz]

Re: Rash, maybe from Velcade

by liz on Sat Aug 13, 2011 8:31 pm

Well my husband has been in the hospital for the last 12 day with a sunburn like rash that is ichy. The skin byopsy shows a drug eruption. He is on Velcade. Everyday he come down with a new system like kidney failure, blood clots and hemotomas. They think its the Velcade. If I were you I would go to the Velcade durg site sunburn like rash is a symptom . My husband is still in the hospital and I hope and pray he makes it. He had his last cemo with Velcade three weeks ago and got the news he was in remission. Now he is on deaths door because of this rash.