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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Re: How long until treatment has an effect?

by InQ on Sun Mar 09, 2014 9:17 pm

Dr. Jason Valent wrote: "If the M-protein is the marker of disease, it takes about 8 weeks to get a good assessment of response. The immunoglobulin made prior to the start of treatment circulates in the blood for 6-8 weeks. Although with effective treatment, you should start to see a decline in the M-protein after the first cycle of therapy."

How do the excess immunoglobulins that hang around the blood for 6-8 weeks get removed? Is it desirable for those Ig's to be removed from the blood?

InQ

Re: How long until treatment has an effect?

by NStewart on Mon Mar 10, 2014 12:40 pm

Apollo,

You mention that Mayo in Florida doesn't take your mother's insurance. Have you contacted Moffitt in Florida? I don't know how far that is from you, but it is worth at least finding out if they take your mother's insurance and, if so, taking her there for a 2nd opinion. They have a good myeloma team there. They might also be able to give you the name of a doctor in your area who is experienced in working with people with myeloma. You could also call Mayo again and ask them for the name of an oncologist in your area. But, if at all possible, you should get your mother in to see a myeloma specialist.

Do not listen to your current oncologist. 1 week of treatment isn't enough to determine whether a treatment is successful, or not. Your oncologist should be talking with you and explaining the disease and the possible treatments with both you and your mother.

I wish you and your mother the best in finding the oncologist who is right for your mother and a treatment that is successful.

Nancy in Phila

NStewart
Name: Nancy Stewart
Who do you know with myeloma?: self
When were you/they diagnosed?: 3/08
Age at diagnosis: 60

Re: How long until treatment has an effect?

by Appollo on Mon Mar 10, 2014 10:36 pm

Thank you to everyone who gave their insight and experience. It really meant a lot. My mother is doing much better though but we're still gonna take her to another hospital.

Everyone really confirmed alot of things and told me stuff I didn't know. So thank you and I will be writing/posting again to give updates, comments, and posts. Thanks again. :D

Appollo
Who do you know with myeloma?: my mother
When were you/they diagnosed?: 2/26/14
Age at diagnosis: 66

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