[lstroupe]

Revlimid maintenance therapy, secondary cancers

by lstroupe on Fri Jun 08, 2012 9:37 pm

Has anyone had Revlimid as a maintenance therapy after auto transplant? If so have you ever received melphalan? Have you experienced any secondary cancers if so what type was/is experienced?

[texas-tea13]

Re: Revlimid maintenance therapy, secondary cancers

by texas-tea13 on Fri Jun 08, 2012 11:51 pm

Hello, I have been on Revlimid 15mg for about a year and a half, and so far no secondary cancers. I just had my two year ASCT evaluation and i am doing great!

[Marcia]

Re: Revlimid maintenance therapy, secondary cancers

by Marcia on Fri Jun 29, 2012 4:07 pm

I also take 15 mg of Revlimid and have done so since March 2011. I have no issues with secondary cancers at this time. Make sure you have a recent colonoscopy and mammogram. Go to your local library and read the New England Journal of Medicine articles regarding the clinical study results (published in May 2012, I think it's #19). I had a SCT, but my myeloma cells were resistant to the chemotherapy. I still have 15 percent of the cells in my bone marrow, so I am happy to take the Revlimid. I had low amounts of the M-spike in my blood work at first, but I have been in remission since November 2011.

[greg matthews]

Re: Revlimid maintenance therapy, secondary cancers

by greg matthews on Wed Jul 04, 2012 11:34 pm

I had a stem cell transplant in May 2011, I was on Revlimid up to Feb 2012. I had the doctors stop it do to the rash that kept coming back. I went down to 5 mg still rash came back. I was worried of secondary cancer and stephen johnson syndrome.

I am to date still in remission. I am not on any meds.

I am headed back for my check up with CTCA this month. If all goes well I will stay off the meds.

Now I take natural stuff

Turmeric/Curcumin
Wobenzym N
Lots of Antioxidents
Vit b17
Vit d
Vit b3 complex

Good luck
Greg

[sunshine]

Re: Revlimid maintenance therapy, secondary cancers

by sunshine on Thu Jul 05, 2012 7:55 am

Based on the medical literature. SPM associated with llenalidimide shows up 24 months after maitnance use. The incidence of SPM was seen mostly in those who had alkylator chemotherapy & not so much in patients without alkylator therapy.