I am curently waiting for insurance aproval to happen and then they will start the collection and transplant processes. I am doing realy well with the chemo so far and my IGA is normal now.
I was told I would be In the Detroit Karmonos cancer center for two weeks after the transplant before going home.
I need advice on just how worried and carefull I need to be about the period directly before and after the transplant and most of all the 3 month period at home. I do have 3 cats.
Any advice or stories of you or a loved ones personal exsperance on this period of time would be greatly appreciated.
Paul
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Paul Wilson - Name: Paul W
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Feb 2012
- Age at diagnosis: 51
Re: need After transplant quarantine advice
I had two SCT's last summer and had no problems when I came home.
I was probably not as careful as I should have been, but it would have been real hard to be clean on a farm. But more concerning was having my 3 children going to school and coming back with all of the school germs. I guess I could have moved in with a relative for a few months afterwards, but I chose not to.
I did intentionally have mine scheduled for the summer, so that my immune system would be up and running by flu season.
I kept a bottle of hand sanitizer in each car and in most rooms. The kids were not great at using it, but it came in handy for me.
Good luck! I'll bet it goes more smoothly than you anticipate.
I was probably not as careful as I should have been, but it would have been real hard to be clean on a farm. But more concerning was having my 3 children going to school and coming back with all of the school germs. I guess I could have moved in with a relative for a few months afterwards, but I chose not to.
I did intentionally have mine scheduled for the summer, so that my immune system would be up and running by flu season.
I kept a bottle of hand sanitizer in each car and in most rooms. The kids were not great at using it, but it came in handy for me.
Good luck! I'll bet it goes more smoothly than you anticipate.
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Stann
Re: need After transplant quarantine advice
Paul,
We have a cat as well, and when EJ had his SCT, the cat was no problem. In fact, as hard as he tried, the cat wouldn't stay off the bed during the day once he got home - she was his constant companion. However, I recommend having someone else clean the litter box!
Lyn
We have a cat as well, and when EJ had his SCT, the cat was no problem. In fact, as hard as he tried, the cat wouldn't stay off the bed during the day once he got home - she was his constant companion. However, I recommend having someone else clean the litter box!
Lyn
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Christa's Mom - Name: Christa's Mom
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: September, 2010
- Age at diagnosis: 53
Re: need After transplant quarantine advice
Paul,
Are you planning an auto transplant? I am just curious.
My husband may also be getting his sct at Karmanos Detroit late this summer if our insurance approves it.
Regarding the cats, from what I have read, they should be fine. Just don't let them lick you, wash your hands after you pet them and do not handle the litter box. It is best if they don't sleep with you.
Jenn
Are you planning an auto transplant? I am just curious.
My husband may also be getting his sct at Karmanos Detroit late this summer if our insurance approves it.
Regarding the cats, from what I have read, they should be fine. Just don't let them lick you, wash your hands after you pet them and do not handle the litter box. It is best if they don't sleep with you.
Jenn
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Jenn - Name: Jenn
- Who do you know with myeloma?: Husband
- When were you/they diagnosed?: September 2011
- Age at diagnosis: 45
Re: need After transplant quarantine advice
Thanks for everyones input.
I am having an Auto SCT dont know when yet . They called me on friday on the insurance and now I am waiting for The nurse/schedualer to call on when its to be done.
Hopefully its not for a few weeks yet because I need time to get my house ready. I have a spare bedroom I am going to sleep in and spend a good amount of time in to "ride out the storm". But we have been using it as a work room so it needs to be cleaned up.
My wife is real worried about me getting something durring this time. Dont know what to think myself, I know I have to be very careful but I cant see the Docter letting me leave the hospital until things are somewhat safe with my immune system?
Paul
I am having an Auto SCT dont know when yet . They called me on friday on the insurance and now I am waiting for The nurse/schedualer to call on when its to be done.
Hopefully its not for a few weeks yet because I need time to get my house ready. I have a spare bedroom I am going to sleep in and spend a good amount of time in to "ride out the storm". But we have been using it as a work room so it needs to be cleaned up.
My wife is real worried about me getting something durring this time. Dont know what to think myself, I know I have to be very careful but I cant see the Docter letting me leave the hospital until things are somewhat safe with my immune system?
Paul
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Paul Wilson - Name: Paul W
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Feb 2012
- Age at diagnosis: 51
Re: need After transplant quarantine advice
I had an auto transplant in January of 2010. I was in the hospital long enough for my blood levels to rise high enough that I was out of acute danger. I had no restrictions placed on me when I went home other than to avoid people with obvious illness, babies who had just had a vaccination, and large crowds. I have 2 cats who sleep with me and spend a great deal time on me when I am sitting still. One of them was with me at all times after I came home. I had someone else take care of the litter boxes for about 2 months after coming home. I didn't go out of the way to do anything that I don't normally do other than to wash my hands more often than I did before the transplant.
You don't need to go to heroic lengths to sanitize your home, the people and the animals in your life. Being a little more careful than normal is fine.
Nancy in Phila
You don't need to go to heroic lengths to sanitize your home, the people and the animals in your life. Being a little more careful than normal is fine.
Nancy in Phila
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: need After transplant quarantine advice
Thank you all for your help and good luck and God bless to all of you.
Paul
Paul
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Paul Wilson - Name: Paul W
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: Feb 2012
- Age at diagnosis: 51
Re: need After transplant quarantine advice
HI PAUL
My husband has multiple myeloma he is 72 years old. He works full time. He was in Hospital 17 days with each transplant. One Oct 2011 One Jan 2012. We have one cat. First the cat. Well i am now changing the litter all of the time to be on the safe side John does not touch the cat nor will he ever change the litter again. The experience has been a bit tough on the cat. You may wish to consider having only one cat. I do know that that is tough on the owner but the cat certainly gets discouraged trying to adjust to the new normal. John stayed in his room the entire time that he was in the hospital. The goal after getting the chemotherapy agent is to have the normal blood picture bottom out so the risk for infection is greater. We were completely neurotic about the hand washing . Fortunately so is everyone else. Generally the experience was not too bad. John was in the top ten percent of good experiences for both his stem cell transplants. He did not experience one side effect of any of his treatments. As well as receiving excellent medical care I believe that laughter and play contribute immensely to recovery. The room was decorated with family pictures, caricatures and John maintained an exercise routine each day.. He got up got dressed and did his integrative healing work (listening to tapes of guided meditation etc.) He had very little company with the exception of a few family members. Once home he stayed away from crowds and continues to do so. So the bottom line is he is not in quarantine but he is pretty cautious. Hope this helps Our new normal has been a very positive experience. I trust that this will be helpful. CU Alexandra in Toronto
My husband has multiple myeloma he is 72 years old. He works full time. He was in Hospital 17 days with each transplant. One Oct 2011 One Jan 2012. We have one cat. First the cat. Well i am now changing the litter all of the time to be on the safe side John does not touch the cat nor will he ever change the litter again. The experience has been a bit tough on the cat. You may wish to consider having only one cat. I do know that that is tough on the owner but the cat certainly gets discouraged trying to adjust to the new normal. John stayed in his room the entire time that he was in the hospital. The goal after getting the chemotherapy agent is to have the normal blood picture bottom out so the risk for infection is greater. We were completely neurotic about the hand washing . Fortunately so is everyone else. Generally the experience was not too bad. John was in the top ten percent of good experiences for both his stem cell transplants. He did not experience one side effect of any of his treatments. As well as receiving excellent medical care I believe that laughter and play contribute immensely to recovery. The room was decorated with family pictures, caricatures and John maintained an exercise routine each day.. He got up got dressed and did his integrative healing work (listening to tapes of guided meditation etc.) He had very little company with the exception of a few family members. Once home he stayed away from crowds and continues to do so. So the bottom line is he is not in quarantine but he is pretty cautious. Hope this helps Our new normal has been a very positive experience. I trust that this will be helpful. CU Alexandra in Toronto
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