Hi everyone! I'm new to the forum and I hope everyone is doing well tonight.
I was diagnosed with multiple myeloma last June. I was Stage 3 and my blood numbers were off the chart. I am currently on cycle 9 of the typical CyBorD chemo regiment and my numbers have steadily gotten better. My Lamda light chain number, (LLC) which was over 6000 when I was first diagnosed is now around 400-500 (normal is like 12-20). It had been this low since last Nov, when my doc added 15mg of Revlimid to my treatments. He tells me a normal cycle of Revlimid is 25mg for 21 days; I take it for 14 days at 15mg in conjunction with chemo. All of my blood numbers are normal except for the LLC, which has stayed the same.
Does anyone else get Revlimid AND chemo? If so, is it working?
Has anyone gotten a stem cell transplant? What were the results?
I've searched the forum but I'd like to hear from some more recent cases.
God bless us all and I thank you for your help.
fred
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freddiefokkker - Name: freddiefokker
- Who do you know with myeloma?: me!
- When were you/they diagnosed?: June 2011
- Age at diagnosis: 42
Re: Chemo AND Revlimid?
Hello, Freddie, and welcome to these forums (fora?)
A lot of us have had stem cell transplants. A lot of us have had 2... or none.
Some of us have had Revlimid as a front-line treatment, but not yet very many, I think. I just this eve read about someone else who is having it (a commenter on this story: https://myelomabeacon.org/news/2012/02/01/experts-publish-consensus-statement-on-maintenance-therapy-in-multiple-myeloma/ ), but otherwise I don't know of anyone.
I think there is still relatively general agreement that getting a stem-cell transplant is the best route for those who are strong enough, tho I think that agreement is by no means unanimous at this time... there is certainly a lot of discussion about it.
I had a stem cell transplant this fall (Sept 22) after a spring/summer on Velcade and Dexamethasone which followed a brief regimen of radiation to knock out two tumours in vertebrae. I am doing really quite well at the moment, and am in VGR remission... still closely monitored, tho. Early days.
Different people have different stories about their experiences... stay tuned, and be sure to share yours as it is ongoing.
A lot of us have had stem cell transplants. A lot of us have had 2... or none.
Some of us have had Revlimid as a front-line treatment, but not yet very many, I think. I just this eve read about someone else who is having it (a commenter on this story: https://myelomabeacon.org/news/2012/02/01/experts-publish-consensus-statement-on-maintenance-therapy-in-multiple-myeloma/ ), but otherwise I don't know of anyone.
I think there is still relatively general agreement that getting a stem-cell transplant is the best route for those who are strong enough, tho I think that agreement is by no means unanimous at this time... there is certainly a lot of discussion about it.
I had a stem cell transplant this fall (Sept 22) after a spring/summer on Velcade and Dexamethasone which followed a brief regimen of radiation to knock out two tumours in vertebrae. I am doing really quite well at the moment, and am in VGR remission... still closely monitored, tho. Early days.
Different people have different stories about their experiences... stay tuned, and be sure to share yours as it is ongoing.
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Snip - Name: John Snippe
- Who do you know with myeloma?: me
- When were you/they diagnosed?: Jan, 2011
- Age at diagnosis: 56
Re: Chemo AND Revlimid?
Welcome to the club Fred
My treatment before my SCT consisted of first Velcade & dex, second velcadedex, and doxil and lastly Velcade, dex and rev. I started with 15 mg rev for a couple of weeks and then was increased to the 25mg. The rev was the one that finally reduced the counts enough to go ahead with the SCT which I had in Nov. Revlimid worked very well for me without noticeable side effects.
Ritz
My treatment before my SCT consisted of first Velcade & dex, second velcadedex, and doxil and lastly Velcade, dex and rev. I started with 15 mg rev for a couple of weeks and then was increased to the 25mg. The rev was the one that finally reduced the counts enough to go ahead with the SCT which I had in Nov. Revlimid worked very well for me without noticeable side effects.
Ritz
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Ritz - Name: Ritz
- Who do you know with myeloma?: myself
- When were you/they diagnosed?: Oct 2010
- Age at diagnosis: 62
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