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Questions and discussion about smoldering myeloma (i.e., diagnosis, risk of progression, potential treatment, etc.)

Smolderers: How do you take your IP6 (inositol)?

by FingersCrossed on Thu Jun 04, 2015 8:46 am

I just ordered an IP6 / inositol complex and was wondering how others used it? I've been doing some research and it seems like you should cycle on and off in addition to taking it on an empty stomach. I was thinking about taking it 4 days on, 3 days off, each week. Is that enough?

I'm not sure how many capsules I'll be taking. I feel like it should be more than the protective 2 capsules, 2x / day since, I clearly have an immune system problem and am not just taking it for general health. I think Dr. Shamsuddin recommends 8 capsules twice a day (?), but is that just for active multiple myeloma or also smoldering multiple myeloma?

So ...

1) How do you take it?

2) How much do you take as a smolderer?

3) Any side effects? Any way to avoid too much impact on iron, calcium, magnesium?

Thanks!

FingersCrossed
Name: FingersCrossed
Who do you know with myeloma?: Me
When were you/they diagnosed?: Oct 2014 (Smoldering)
Age at diagnosis: 44

Re: Smolderers: How do you take your IP6 (inositol)?

by FingersCrossed on Mon Jun 08, 2015 9:00 am

Anyone?

I know there are some smolderers who take IP6. :?

FingersCrossed
Name: FingersCrossed
Who do you know with myeloma?: Me
When were you/they diagnosed?: Oct 2014 (Smoldering)
Age at diagnosis: 44

Re: Smolderers: How do you take your IP6 (inositol)?

by Carol of Eden on Mon Jun 08, 2015 11:18 am

I take inositol, but you sound like you know more about it than me, so I don't see that I can be helpful.

But so you know you are not alone, I take one inositol capsule of 500 to 650 mg (?) and 3 to 4 IP-6 of 500 mg/day. I think that is about the right ratio. I have not heard about cycling on and off, but I have not researched it - just not enough time to cover all these bases. I take it late afternoon along with curcumin, Brazil nuts (selenium / oil), black seed oil, and a few other supplements, so more or less on an empty stomach but not alone. No idea if I'm doing the right thing.

Carol of Eden
Name: Carol
Who do you know with myeloma?: myself
When were you/they diagnosed?: MGUS 2009, SMM 2013
Age at diagnosis: 50

Re: Smolderers: How do you take your IP6 (inositol)?

by FingersCrossed on Mon Jun 08, 2015 12:37 pm

Thanks for responding, Carol.

Your comments are helpful. I am certainly curious about how much others are taking and whether they cycle on and off or just take it continuously. The IP 6 formula I got has IP6 and Inositol in one capsule, so I don't have to worry about getting the ratio right.

I take some first thing in the morning before my workout (empty stomach), and then I'm planning to take some late afternoon before snacktime. I'm thinking 4.5 hours after lunch should be long enough to wait.

FingersCrossed
Name: FingersCrossed
Who do you know with myeloma?: Me
When were you/they diagnosed?: Oct 2014 (Smoldering)
Age at diagnosis: 44


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