[NStewart]

Re: Is this a disaster?

by NStewart on Sun Aug 07, 2011 12:50 pm

Amelie-
My m-protein has started to rise a little recently, too. My oncologist had just started seeing me on a 3 month basis when the results came back at 0.4. His office called and rescheduled my next appointment to an earlier date. When I got my second result it had gone up another tenth of a point. I am back on a 6 week appointment schedule. My oncologist said that he wouldn't be concerned until the number went up to 1.0. Then it would be time to consider starting some kind of treatment again. I am now 18 months post transplant and feeling quite good.

I would question the oncologist about waiting so long to restart treatment. I know that I was having all kinds of problems when my m-spike was in the 2 range. But, each person is different. What do all of the other blood test results look like. Mine are all in the normal range including the free lite numbers and ratio.

Good luck,
Nancy

[Amelie]

Re: Is this a disaster?

by Amelie on Sun Aug 07, 2011 4:19 pm

Thanks so much for your replies!

I am wondering why they won't give John any treatment until 6 - it seems quite high?
On the other hand I have read somewhere that people without myeloma has a m componenet between 0 and 5. Oh all these numbers!!!

[anton]

Re: Is this a disaster?

by anton on Sun Aug 07, 2011 6:27 pm

Dear Amelie

Might curcumin help to stabilise the m-spike ?
I don't know if anyone ever tried it under these circumstances.
It would be a relatively harmless test.

Best regards

Anton