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Also new but not too new
I've been reading this site since May 2010 when my husband was diagnosed. Our story: Emergency room/hospital stay due to high blood pressure - tests showed creatinine level high - follow up kidney biopsy resulted in the diagnosis - nephrologist gave us the report and referral to oncologist the next day - began Velcade/Dex treatment the following day. Oncologist wasted no time and for that we are grateful. Now 4 months and 6 cycles later we are doing pre harvest testing with possible transplant - still needs the stress test due to heart attack and stents in 2000 and another stent in 2009. As a result of the multiple myeloma/high blood pressure/high cholesterol kidneys are damaged but not to the point of needing dialysis. Labs and recent BMB indicate complete remission. So decision needs to be made soon on the next step. This site is "priceless" to multiple myeloma patients and caregivers - I appreciate the Beacon staff, contributing authors, patients, and physicians for sharing information.
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Kansas - Name: Rex
- Who do you know with myeloma?: self
- When were you/they diagnosed?: May 2010
- Age at diagnosis: 61
Re: Also new but not too new
Update...Stem cell transplant done late October - and as was the usual course - had most of the side affects, mouth sores, bad reaction to pain meds and sleeping pills, 40 pound weight loss, short hospital stay in December due to low blood pressure - but since then doing fairly well. Fatigue still an issue - especially if doing too much. Will have 100 day check up in February.
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Kansas - Name: Rex
- Who do you know with myeloma?: self
- When were you/they diagnosed?: May 2010
- Age at diagnosis: 61
Re: Also new but not too new
Kansas-
Believe it or not the fatigue does gradually resolve. I think it was about 8 - 9 months after my transplant that the fatigue really began to lift for me. I still get tired more easily, but I'm also doing a lot more than I had been able to do for years because of fatigue. So, hang in there and know that you will gradually get some normalcy back.
Nancy
Believe it or not the fatigue does gradually resolve. I think it was about 8 - 9 months after my transplant that the fatigue really began to lift for me. I still get tired more easily, but I'm also doing a lot more than I had been able to do for years because of fatigue. So, hang in there and know that you will gradually get some normalcy back.
Nancy
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NStewart - Name: Nancy Stewart
- Who do you know with myeloma?: self
- When were you/they diagnosed?: 3/08
- Age at diagnosis: 60
Re: Also new but not too new
Nancy,
Thanks so much for the encouragement...Rex tends to overdo (shoveling snow here in Kansas) and then pays for it for a couple days. Keep telling him he is still in the healing process -- and that takes time. Hearing what everyone else is going through that have had same experience helps a lot - at least know that part is "normal". Take care. Kay
Thanks so much for the encouragement...Rex tends to overdo (shoveling snow here in Kansas) and then pays for it for a couple days. Keep telling him he is still in the healing process -- and that takes time. Hearing what everyone else is going through that have had same experience helps a lot - at least know that part is "normal". Take care. Kay
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Kansas - Name: Rex
- Who do you know with myeloma?: self
- When were you/they diagnosed?: May 2010
- Age at diagnosis: 61
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