Pat Killingsworth's Archive

Pat Killingsworth wrote a regular column for The Myeloma Beacon from April, 2010 to February, 2016. He was diagnosed with multiple myeloma in April, 2007 at the age of 51. He initially achieved a complete response to treatment with a combination of extensive radiation and continuous drug-based therapy. Four years after his diagnosis, Pat's disease returned, and he underwent a series of additional treatments, including a total of three autologous stem cell transplants at different times. Unfortunately, Pat passed away on his 60th birthday in February, 2016. By that time, however, Pat had made a significant impact on the lives of many patients and caregivers through his extensive writing and speaking about multiple myeloma. Pat's efforts were supported and made possible in many ways by his wife Pattie, who is also a cancer survivor, and is still cancer-free today.

Pat Killingsworth has written 140 article(s) .

[ by | Feb 4, 2016 12:14 pm | 36 Comments ]
Pat’s Place: Dare I Dream Again?

I have some wonderful news to share. My last PET scan showed no active myeloma anywhere. None in my existing lesions, and the extramedullary tumor in my groin is gone. No new lesions.

Given that I’ve become a nonsecretor over time, tests on my blood and urine don’t help much in tracking my myeloma. My light chains are in the normal range, whether my myeloma is active or not. Only a PET scan and bone marrow biopsy can help my …

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[ by | Dec 23, 2015 3:30 pm | 36 Comments ]
Pat’s Place: Holiday Cheer

Those of you who have been following my story remember how carefully my wife Pattie and I weighed the pros and cons before deciding I would proceed with a salvage autologous stem cell transplant.

The transplant this summer worked so well that my myeloma specialist strongly recommended that we repeat it this fall.

There was just a touch of measurable multiple myeloma left. Why not stick with a therapy that was working? Hit my myeloma hard while it’s down.

Once …

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[ by | Nov 6, 2015 5:47 pm | 23 Comments ]
Pat’s Place: The Power Of Momentum

In my column last month, I shared details of my plan to push the envelope and undergo back-to-back, or tandem, autologous stem cell transplants.

I made a forceful point in that column about the importance of living in the moment; not looking ahead to the point that I lost precious days in the weeks leading up to the second transplant.

For the most part, I was pretty good at living in the moment. For example, I squeezed in a …

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[ by | Oct 3, 2015 6:34 pm | 26 Comments ]
Pat’s Place: Stem Cell Transplant – Let’s Play Two

Last month I promised an update on how I responded to the salvage au­tol­ogous stem cell transplant I underwent in July. The news is good!

Although some active myeloma remains in the occipital lesion at the base of my skull, and in both hips, all lesions have significantly improved. A half dozen other lesions are clear. And the extramedullary plasmacytoma that was growing in the lymph nodes in my groin? Gone!

I had a 0.2 g/dL M-spike going in and …

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[ by | Sep 8, 2015 8:28 pm | 28 Comments ]
Pat’s Place:  Always More Questions Than Answers

Let me start out with a quick update about how I’m doing after my salvage transplant earlier this summer.

As I become more active, I’m experiencing more bone pain. It’s hard to know if the pain is caused by old lesions or newly formed ones. I’ll know more later this week after having some tests done.

I’m feeling much stronger; I’m walking, swimming, and doing intense physical therapy. I lost a lot of muscle mass over the summer, but …

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[ by | Aug 10, 2015 4:30 pm | 44 Comments ]
Pat’s Place: I’m Home!

It’s been 37 long, hard days away from home for my salvage transplant. The good news: I’m home early!

I left last week facing a very difficult decision: Should I take my specialist’s advice and move forward with a second, tandem, stem cell transplant?

My doctor felt if the first one didn’t work, well, skip the second transplant. But if the one I just had got most, or all, of my myeloma, crush it with a second transplant.

“Don’t make …

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[ by | Jul 10, 2015 6:18 am | 42 Comments ]
Pat’s Place: Tick Tock, Flip Flop

The July 4th holiday is behind us. I spend it in Iowa City, harvesting stem cells for my upcoming autologous stem cell transplant.

To review, after my fourth relapse – and a number of short-lived therapy options that would only work for months, not years – I made the difficult decision to try a salvage auto transplant, but only because it was going to be modified, as I described in my April column. I had a failed transplant four …

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