Kevin Jones's Archive

Kevin Jones wrote a monthly column for The Myeloma Beacon from December 2011 through September 2013. He was diagnosed with multiple myeloma in January 2011 at the age of 52. Kevin lives in Michigan and works as an engineer in the aerospace industry. He enjoys biking, hockey, woodworking, walks in the woods, and family time. Kevin and his wife Karen have three grown children.

Kevin Jones has written 22 article(s) .

[ by | Feb 21, 2013 12:44 pm | 29 Comments ]
ME vs. MM: Life After Dex

Perhaps the title of this column more appropriately should be "Life After CRD," since I've now completed 24 cycles of Kyprolis (carfilzomib), Revlimid (lena­lido­mide), and dexa­metha­sone (Decadron), commonly referred to as CRD, as part of a clinical trial for newly diagnosed patients.

However, since dexa­metha­sone seemed to be the predominate source of my side effects, and be­cause I liked the play on words, I went with the title as shown.

So, I've completed the …

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[ by | Jan 17, 2013 12:17 pm | 31 Comments ]
ME vs. MM: Two-Year Cancerversary

The end of this month marks my second anniversary since being diagnosed with multiple myeloma.  It's also the end of my induction therapy - a two-year clinical trial with Kyprolis (carfilzomib), Revlimid (lenalidomide), and dexa­metha­sone, commonly referred to as CRD, for newly diagnosed patients.

What a long, strange trip it's been - one I'll reflect on briefly for those who aren't familiar with it, then I'll pass along a few tidbits I …

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[ by | Dec 20, 2012 11:28 am | 20 Comments ]
ME vs. MM: Humble Thyself

As I approach the end of my induction therapy and the clinical trial I've been on, I find myself reflecting on the past two years since I was diagnosed with multiple myeloma.

One of the consequences of the diagnosis that I've come to recognize – and which I most likely will have to accept even more in the future – is how humbling dealing with cancer can be.

Sure, there are the little things, like figuring out how to manage a 24-hour …

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[ by | Nov 15, 2012 12:55 pm | 24 Comments ]
ME vs. MM:  Community

I mentioned in a recent column how the topics for my columns crop up from a variety of sources.  This month's topic formed in my head (as you might expect, during a dex-day) due to the convergence of three separate, but related items and events:

A recent posting to one of the Beacon columns or forums indicating the site is not much more than a place for everyone to come and drown their sorrows.

A conversation I had with one …

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[ by | Oct 18, 2012 11:44 am | 12 Comments ]
ME vs. MM: Dreamweaver

I recently had one of the vivid dreams I've tended to experience ever since being on chemotherapy for multiple myeloma.

I have so many different drugs flowing through me at any given time that I can't be sure which one causes the dreams.  Or perhaps they are due to some particular combination.  I was also fighting another sinus infection at the time, so the antibiotics, decongestants, and cough suppressants I was taking may also have been a factor.

Whatever the …

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[ by | Sep 20, 2012 11:48 am | 14 Comments ]
ME vs. MM: How Did I Get Here?

Many of the topics I write about start out as random things in my life that eventually grow into a column. Sometimes the seed is planted by a comment someone makes, or perhaps something I read, or in at least one case by a dream.

The idea for this month's column came to me when I recently heard the song "Once In A Lifetime" by the Talking Heads, which includes the line "You may ask yourself, well, how did I …

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[ by | Aug 16, 2012 11:07 am | 13 Comments ]
ME vs MM:  Prognosis?

One of the first questions most of us probably ask after being diagnosed with multiple myeloma is "How long do I have?", or some derivative thereof.  For me, I think the question came right after asking what multiple myeloma is, and whether it's curable.

Perhaps it might be better to take a more philosophical approach and respond by asking "How long does anyone have?", reflecting the fact that life is a crap shoot, stuff happens, and we truly don't know …

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