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Re: The Grim Reaper
I agree that after 2 auto transplants I cannot even fathom doing a 3rd transplant, which would most likely be an allo [donor] transplant this time around. I, as well, am very slowly relapsing, but soon I will have to decide whether to start treatment and be on it forever, or start treatment for a few months in preparation for an allo.
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Guest1
Re: The Grim Reaper
Accepting the diagnosis was most difficult for me as I have always enjoyed good health throughout my life. I understand how you feel and I realize I have enjoyed 30 more years of life without myeloma. Accepting my diagnosis was the first part of getting my head around the fact that I had this disease and it wasn't going away. Learn as much as you can about this disease and put a team together that you trust and have confidence in. It's not easy and it won't happen over night. Please don't give up! "Don't ruin the time you have left worrying about the time you have left."
You can't change the diagnosis, but you can control how you respond to it! I wish you the best, and hope you will find some peace with the passage of time.
You can't change the diagnosis, but you can control how you respond to it! I wish you the best, and hope you will find some peace with the passage of time.
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Dano - Who do you know with myeloma?: Me
- When were you/they diagnosed?: Jan 2014
- Age at diagnosis: 65
Re: The Grim Reaper
You know, it's ok to wallow from time to time but that isn't going to get you better or help to keep you there. When I was first diagnosed, my mother -- who is very melodramatic about everything -- couldn't understand why I was curled up in bed, depressed. I told her it wasn't going to attack the myeloma and get me into remission. Instead I go angry and determined and went from Stage 3 to remission.
Two years ago, I came out of remission, but just with an incremental M spike. While I dreaded the quarterly blood work, I went on with my life. Now I'm back at a treatable level -- of lambda light chains, not the M spike. This summer has been a bummer while I went through Velcade cycles. But I am once again determined to get back into remission, get off the blasted drugs, and get my life back.
Will myeloma or an associated infection kill me one day? Probably. I just can't focus on that right now. I have too much living to fit in before that day comes. As I've noted in other posts, I promised my daughter I'd see her get her PsyD and promised my sister I'd be around for her for a long time. I plan to keep that promise to my daughter and the promise to my sister for as long as possible.
Dana A
Two years ago, I came out of remission, but just with an incremental M spike. While I dreaded the quarterly blood work, I went on with my life. Now I'm back at a treatable level -- of lambda light chains, not the M spike. This summer has been a bummer while I went through Velcade cycles. But I am once again determined to get back into remission, get off the blasted drugs, and get my life back.
Will myeloma or an associated infection kill me one day? Probably. I just can't focus on that right now. I have too much living to fit in before that day comes. As I've noted in other posts, I promised my daughter I'd see her get her PsyD and promised my sister I'd be around for her for a long time. I plan to keep that promise to my daughter and the promise to my sister for as long as possible.
Dana A
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darnold - Name: Dana Arnold
- Who do you know with myeloma?: self
- When were you/they diagnosed?: May 2009
- Age at diagnosis: 52
Re: The Grim Reaper
There's no question that the diagnosis is a tough thing to deal with and that it makes you consider the fact that your life may end considerably earlier than you thought. I try not to worry too much about it, though. The last thing I want is to get hit by a bus next week and for my last thought to be, "Why did I waste so much time worrying about that damn myeloma?"
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Mike F - Name: Mike F
- Who do you know with myeloma?: Me
- When were you/they diagnosed?: May 18, 2012
- Age at diagnosis: 53
Re: The Grim Reaper
Hi guest and lys2012.
You are both 20 years younger than I am and I know it was very hard for me to accept that my life would be shorter than I had expected.. It would be harder if I were your age.
What a hard position to be in, lsy2012, fearful that if you have another SCT, your career will be knocked back to ground zero.
And, Guest 1, you have already had 2 SCT? Whew, that would be hard.
One famous person who comes to mind who died younger than you guys is Jesus (33).
Cathy
You are both 20 years younger than I am and I know it was very hard for me to accept that my life would be shorter than I had expected.. It would be harder if I were your age.
What a hard position to be in, lsy2012, fearful that if you have another SCT, your career will be knocked back to ground zero.
And, Guest 1, you have already had 2 SCT? Whew, that would be hard.
One famous person who comes to mind who died younger than you guys is Jesus (33).
Cathy
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antelope1225 - Name: Cathy1225
- Who do you know with myeloma?: Myself
- When were you/they diagnosed?: May 25 2012
- Age at diagnosis: 55
Re: The Grim Reaper
There were three postings originally in this discussion thread -- at this location -- which we have moved for further discussion to this thread in the forum:
"Religion in the forum"
For us, these postings raise some questions about how to deal with postings of a religious nature here in the forum, and we would appreciate your thoughts on the subject.
If you'd like to share your thoughts on that subject with us, and the rest of the forum community, please go to the discussion at the link above and share your perspectives.
You are also welcome - of course! - to continue with comments here related to the discussions in this thread.
Thank you!
"Religion in the forum"
For us, these postings raise some questions about how to deal with postings of a religious nature here in the forum, and we would appreciate your thoughts on the subject.
If you'd like to share your thoughts on that subject with us, and the rest of the forum community, please go to the discussion at the link above and share your perspectives.
You are also welcome - of course! - to continue with comments here related to the discussions in this thread.
Thank you!
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