Paul C here. Yesterday I went from a 15 mg Revlimid level to 20 mg. (In December 2013, at the very beginning of my treatment, I lasted only 2 weeks at the usual 25 mg before Stevens Johnson syndrome set in, and we switched to a Cytoxan cocktail.) So we know 15 mg isn't stopping the cancer from growi...

Thank you, Karen, for your report. Gives me something to bounce off of, since there are so few of us Empliciti patients. Consulted with doc today. Next test of M-spike and kappa-lambda ratios (mine went from 1.5 to 17.5 between February and March) will be April 12.We're not sure if my poor health (l...

Paul C here. First post in 2 months. Hard winter, with a bad cold, pulled back and hip (trying to do too much after being laid up with cold), followed by a trip to ER and diagnosis of bilateral pneumonia, and three courses of antibiotics. This forced a hiatus in Empliciti treatment, with unwanted re...

Cheryl, a little fog brain there. Never answered your questions about the drugs associated with the Empliciti infusion. I do not find it burdensome. On the day before infusion, I take 28 mg of dex, and then on the day of infusion, I first receive the blood draw for labs, then receive saline solution...

Paul C Hi Cheryl. Sorry for the delay – laid out this weekend with cold that moved into the chest. I do not detect any symptoms that I definitively attribute only to the Empliciti. For a time, I thought maybe the serious hand seizures, which peaked before the 3d weekly treatment, which we delayed. T...

Too soon to tell, but looks like Empliciti might be working. The M-spike reading went from 0.7 g/dL in November to 1.3 g/dL in December (on a Revlimid 15 mg only maintenance program). Now, after two Empliciti infusions, it is back down to 0.7 g/dL. This is the first time since June it has gone in th...

No new prolonged hand cramping, and no other significant problem arose in the last week, so received the third Empliciti infusion yesterday. So far, no reactions to the infusions themselves. And this week, we speeded up the drip after cautious go-slow drips the first two times around. I am also on 2...

Infusion #3 delayed until labs come back. Checking electrolyte levels. My hands and feet have occasional cramping, seizing up for 1-5 minutes a couple of times a day, with some low pain. Yesterday both hands cramped off and on for hours. That was new. I used hands a lot on new crossword puzzle and s...

Two treatments under my belt. Fatigue and fuzzy thinking on the current regimen of Empliciti, Revlimid, and dex, but today, Christmas eve, is a good day. Thought I was coming down with a cold as weather is relatively poor here in Phoenix (50s/30s, drizzly). Tylenol Cold is the best thing to help me ...

I start treatment with Empliciti (elotuzumab), Revlimid, and dex today. Just read the FDA info sheet for Empliciti. Yikes, I'm getting closer to the cure being worse than the ailment. (Not true, but feels like it) This is the latest in a disconcerting journey: ⋅ October 2013 - Diagnosed st...