HS, Welcome to the forum. This disease is so scary it certainly can be overwhelming at times. We are a little ahead of you in the treatment timeline, Janet and I started our journey a year and half ago. At first blush I thought we had a failed transplant also since Janet's before and after M-spike r...

Hi ANF 921,

Best of luck with your treatment! Sounds like they caught it early! Please search all my posts to get an idea of treatment with Revlimid, Velcade, and dexamethasone (RVD).

Any questions we will try to answer!

That's fantastic! Janet is also doing well! 6 months post transplant. Everything came out clean last two sets of blood work. Pre- and post-transplant M-spike was 0.2 g/dL, took about 60 days to drop to zero even though both bone marrow biopsies actually came out minimal residual disease (MRD) negati...

Dogmom, Sounds like things are going well! Janet struggled with tummy problems up through Day +60, but we did get her off the Zofran (ondansetron) by Day + 40. At about Day +60, our nurse practitioner suggested a probiotic which seemed to put everything back on track. I would consult with the doctor...

I also agree with the thread above. As with Rick, my wife also was treated at UCSF – small world! In our case, she did 7 cycles total. 1st cycle just dexamethasone, 2 more cycles Revlimid and and dexamethasone, 4 more cycles Velcade, Revlimid, and dex. Also minimal residual disease (MRD) negative pr...

Nybor 61,

Surprisingly, my wife's initial treatment with Revlimid and dexamethasone did wonders for her hip pain. At first she couldn't get out of bed without my help.

Best regards,
John

Leslie,

The answer is yes!

My wife and I started the journey 12 months ago. The first two months were the toughest. She is now two months after an autologous stem cell transplant and, back at full strength with no measurable level of myeloma.

Best of luck!

John

Hi Loveparis, My wife had a similar result. Hers said results final. We had to ask for a print out of the result from the doctor. Best of luck with your ASCT, keep the faith and remember, walk, walk, and then walk some more! She made a mile a day on every day except one. I bet you can do it every da...

Oh, yes please! Caregivers have to play to win no matter what the situation or the odds! It is what it is! The good news is that we can make a real difference in the outcome of our significant others! I've been playing this game hard for the last 12 months. The first 3 months I looked at the options...

Hey hey! You go girl! Hopefully it's only one day! Janet did soooo well! Only one day and bone pain minimal! You mentioned Mozobil. Bad news for us; it was a two hour drive! :lol: Good news, leather seats, problem resolved! :D You go girl! You are so on the right track! Make him walk, walk, walk! Ja...