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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Revlimid with curcumin and/or cannabis oil?

by bgmiller80 on Wed Jun 24, 2015 10:48 pm

After relapsing, I have been on 25 mg Revlimid for close to two years. I have been thinking of adding either curcumin and/or one of the cannabis oils discussed in this forum, but am concerned about any potential negative interactions with the Revlimid.

Has anyone had any experience with combining Revlimid with either of these two alternative medicines or have had discussions with their doctor about it?

Thanks,

bgmiller80
Name: Bob
Who do you know with myeloma?: self
When were you/they diagnosed?: 2010
Age at diagnosis: 58

Re: Revlimid with curcumin and/or cannabis oil?

by Sistergrace on Thu Jun 25, 2015 4:00 pm

My oncologist suggested curcumin while I was taking my Revlimid. I had no problems.

Sistergrace

Re: Revlimid with curcumin and/or cannabis oil?

by Cbaker on Thu Jun 25, 2015 4:09 pm

How much curcumin do you take with the Revlimid?

Cbaker

Re: Revlimid with curcumin and/or cannabis oil?

by Bar-none on Thu Jun 25, 2015 4:21 pm

Hi,

I have been on 8 grams per day of Doctor's Best (1 gram horse pills) in divided doses for over a year. This was thru induction, suspended for 30 days post stem cell transplant (SCT), and still ongoing.

Currently on 10 mg maintenance of Revlimid with the curcumin dose and no issues. Also, my myeloma doctor is aware and ok with it. My only complaint is unreimbursed cost, but you can order online and save $$.

All the best! BN

Bar-none
Who do you know with myeloma?: Me
When were you/they diagnosed?: 3/14

Re: Revlimid with curcumin and/or cannabis oil?

by Coastal Eddy on Fri Jun 26, 2015 11:34 pm

Look into the use of metformin and ritonavir. Tthe combination appears to be very effective against myeloma. I am scheduled for an autologous stem cell transplant (ASCT) next month and am con­sidering this combo since Revlimid doesn't appear to be too active in my case.

Have your doctor look up this paper:

S Dalva-Aydemir et al, "Targeting the Metabolic Plasticity of Multiple Myeloma with FDA-Approved Ritonavir and Metformin," Clinical Cancer Research, 21(5) 1161-71 (2014) (abstract)

Good luck.

Coastal Eddy

Re: Revlimid with curcumin and/or cannabis oil?

by bgmiller80 on Sun Jun 28, 2015 8:32 am

Thanks for your responses, very helpful.

Coastal Eddy, Have you discussed your alternative approach with your doctor? It would be interesting to hear his response and/if he will prescribe the drugs. Please keep us updated if you go this route. It sounds promising.

Thanks,

bgmiller80
Name: Bob
Who do you know with myeloma?: self
When were you/they diagnosed?: 2010
Age at diagnosis: 58

Re: Revlimid with curcumin and/or cannabis oil?

by Coastal Eddy on Wed Jul 08, 2015 2:19 pm

I posted more about metformin and ritonavir in this separate forum discussion:

"Metformin + ritonavir appears very effective in myeloma" (started July 8, 2015)

Coastal Eddy


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