In December 2014, I was treated for a 5.5 centimeter plasmacytoma on T10 of my spine. I've just learned that it has recurred, or grown back, in the same place. It doesn't appear that my myeloma has progressed, only a relapse of the plasmacytoma.
Has anyone ever heard of a plasmacytoma growing back? Does this mean I will need systemic treatment, or can they try radiation again?
I did search the forums for relapsed plasmacytoma, but did not find any other questions posted on this topic before.
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Re: Plasmacytoma recurrence in same location
Just a question, what was your treatment for your original plasmacytoma?
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: Plasmacytoma recurrence in same location
I received radiation on the plasmacytoma originally.
I have spoken to the radiation oncologist since my original question. She used a full dose of radiation, and given the proximity to the spinal cord (my plasmacytoma was on T10), I cannot have more radiation there.
I have my biopsy tomorrow to confirm it is an active plasmacytoma. The radiation oncologist suggested that cyber knife may be a possibility and perhaps in combination with systemic treatment.
I was diagnosed MGUS / smoldering multiple myeloma with a solitary extramedullary plasmacytoma in November 2015. When that happened, my alkaline phosphatase was high, and now it is high again, I have pain in my back, and a MRI confirmed activity again on T10. Interestingly, a CT scan showed healing in T10, so the biopsy will decide.
I also now have light chains in my urine, and I did not have that before
Something is definitely going on, but I'm betting that it will be systemic treatment, perhaps with cyberknife added.
I have spoken to the radiation oncologist since my original question. She used a full dose of radiation, and given the proximity to the spinal cord (my plasmacytoma was on T10), I cannot have more radiation there.
I have my biopsy tomorrow to confirm it is an active plasmacytoma. The radiation oncologist suggested that cyber knife may be a possibility and perhaps in combination with systemic treatment.
I was diagnosed MGUS / smoldering multiple myeloma with a solitary extramedullary plasmacytoma in November 2015. When that happened, my alkaline phosphatase was high, and now it is high again, I have pain in my back, and a MRI confirmed activity again on T10. Interestingly, a CT scan showed healing in T10, so the biopsy will decide.
I also now have light chains in my urine, and I did not have that before
Something is definitely going on, but I'm betting that it will be systemic treatment, perhaps with cyberknife added.Re: Plasmacytoma recurrence in same location
Did you have a kyphoplasty or vertebroplasty to fill in T10 when the neoplasm was removed?
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Little Monkey - Name: Little Monkey
- Who do you know with myeloma?: Father-stage 1 multiple myeloma
- When were you/they diagnosed?: March/April of 2015
Re: Plasmacytoma recurrence in same location
My husband has had dozens of plasmacytomas over the last 6 years and, to answer your question, yes they often recur in the same areas they were before.
He has had localized treatment (radiation), as well as chemo (both for when he had bone involvement and when he had too many lumps in too many places for radiation to tackle), and a stem cell transplant over the years. Some areas he cannot have radiation again at this time, but the doctor said that, if they could buy enough time with chemo, then eventually it might be safe to use radiation in those areas again (my husband tolerates the radiation with no side effects at all, so when he can use that, it's a "vacation" from chemo).
I should mention that all of my husband's blood / urine work has been near-normal (no light chain problems, no measurable M-spike) since his transplant in January 2012, but his biopsies show that his lumps are myeloma.
He has had localized treatment (radiation), as well as chemo (both for when he had bone involvement and when he had too many lumps in too many places for radiation to tackle), and a stem cell transplant over the years. Some areas he cannot have radiation again at this time, but the doctor said that, if they could buy enough time with chemo, then eventually it might be safe to use radiation in those areas again (my husband tolerates the radiation with no side effects at all, so when he can use that, it's a "vacation" from chemo).
I should mention that all of my husband's blood / urine work has been near-normal (no light chain problems, no measurable M-spike) since his transplant in January 2012, but his biopsies show that his lumps are myeloma.
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