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Discussion about multiple myeloma treatments, stem cell transplants, clinical trials, alternative medicines, supplements, and their benefits and side effects.

Forum contributor needs help finding stem cell donor

by Mark11 on Thu Mar 26, 2015 9:14 am

I saw this on the web this morning. Beacon forum contributor Dr. Tracy J needs to find a matched donor. Hopefully Dr. Tracy J will find a special person to help her stay in remission like I was fortunate enough to have.

http://www.gmanetwork.com/news/story/458786/pinoyabroad/news/fil-am-doctor-in-need-of-bone-marrow-donor-in-maine

I got asked in another thread why I chose allo as opposed to auto. For the person who asked, just read what Tracy J wrote on her blog / Be-The-Match site; it describes why you do an allo in remission:

You may ask yourself, “why would you DO an allogeneic transplant if the patient is in remission?” Well, we know that myeloma WILL come back, but we don’t know when. So think of the remission as temporary. That’s the reason to go ahead with a transplant, especially in a younger patient, when the risk/ benefit calculation tips to the side of benefit.

Now, why couldn’t you go ahead with a transplant in the presence of metabolically active tumors? There is a period of time after the transplant, lasting weeks to months, when there is no treatment against the myeloma – no chemotherapy, no immune system. No chemotherapy is given because that would interfere with the establishment of the new immune system. My immune system is offline during this time, and the new immune system from the donor hasn’t kicked in yet. It’s like that scene in Star Wars at the end where the defense shields are down. Eventually the new immune system from the donor will grow and take over and kick the myeloma in the butt, but that takes a while. So during this vulnerable window the myeloma cells can grow unharassed, unchecked. Clearly then, it’s incumbent to have the myeloma activity at the lowest level possible at the beginning of this whole process.

Mark11

Re: Forum contributor needs help finding stem cell donor

by Tracy J on Fri Mar 27, 2015 11:58 am

Ha ha ha, this is great! All my family's efforts to raise awareness and find a donor for me have circled around the globe and come back home! My parents and siblings have been amazing - from running numerous Be The Match donor drives, to sending out hundreds of emails and letters to Filipino community and educational groups, to contacting diplomats around the planet - all to grow the registry.

It's amazing and weird and kinda cool that my publicity is out there like this and forum people are running across it! Thanks for posting this, Mark11!

Tracy J
Name: Tracy Jalbuena
Who do you know with myeloma?: Me
When were you/they diagnosed?: 2014
Age at diagnosis: 42

Re: Forum contributor needs help finding stem cell donor

by Mark11 on Tue Mar 31, 2015 1:22 pm

Hi TracyJ,

I spent yesterday in the ER with a family member. You have some challenging job!

I dropped off your story to my GP - he is Filipino. He said he will pass the word along. He knows what great outcomes allos can provide - he prescribes me no meds!

Good luck.

Mark

Mark11

Re: Forum contributor needs help finding stem cell donor

by cindylouise on Wed Apr 01, 2015 5:32 am

I hope you find a suitable donor for your allo. I'll pass along to others the link to your blog / Be-The-Match site.

cindylouise


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